Effects of an Adapted Ski/Snowboarding Program on Quality of Life in

Status Completed

Clinical Trial Summary

This study is assessing quality of life in children with a physical disability who participate in the Children's Hospital Colorado Hospital Sports Program (HSP), where children with physical disabilities are able to participate in more organized sports and active programs with the use of adaptive equipment. This study would assess a child's self reported and parent perceived quality of life before and after child participation in HSP for the winter season. The investigators aim to determine the level of child and parent happiness and satisfaction in specific quality of life aspects including: physical activities and health, feelings, moods, self perception, home life, friends, school, learning and bullying. The investigators believe that children with any physical disability will have a more satisfactory reported quality of life after participating in HSP for one or many years.

Clinical Trial Description

The purpose of this proposed research is to quantify the impact of participation in an adaptive ski/snowboarding program on parent perceived and child self-reported health related quality of life. To this effect, the study will assess children's self-perception of psychological, emotional, physical health of participants as well as their parents perception of the same, through the use of a validated self reported quality of life questionnaire, KIDSCREEN-52, before and after participating in an adaptive ski/snowboarding program every year.

Primary Aims:

1. To determine the level of subject and parent satisfaction and happiness, through a composite of 10 aspects in a quality of life questionnaire, following participation in the Children's Hospital Colorado Hospital Sports Program (HSP) for one winter season.

2. To determine the long-term impact of repeated participation in an adapted ski/snowboarding program through a composite of 10 aspects in a quality of life questionnaire, following participation in the Children's Hospital Colorado Hospital Sports Program (HSP) for consistent winter seasons. ;

Study Design

Related Conditions & MeSH terms

Clinical Trial Details

NCT number	NCT02110290
Study type	Observational
Source	University of Colorado, Denver
Contact
Status	Completed
Phase
Start date	October 2010
Completion date	August 2016

View Details

See also
Status	Clinical Trial	Phase
Recruiting	`NCT05317234` - Genetic Predisposition in Cerebral Palsy	N/A
Recruiting	`NCT05576948` - Natural History of Cerebral Palsy Prospective Study
Completed	`NCT04119063` - Evaluating Wearable Robotic Assistance on Gait	Early Phase 1
Completed	`NCT03264339` - The Small Step Program - Early Intervention for Children With High Risk of Developing Cerebral Palsy	N/A
Completed	`NCT05551364` - Usability and Effectiveness of the ATLAS2030 Exoskeleton in Children With Cerebral Palsy	N/A
Completed	`NCT03902886` - Independent Walking Onset of Children With Cerebral Palsy
Recruiting	`NCT05571033` - Operant Conditioning of the Soleus Stretch Reflex in Adults With Cerebral Palsy	N/A
Not yet recruiting	`NCT04081675` - Compliance in Children With Cerebral Palsy Supplied With AFOs
Completed	`NCT02167022` - Intense Physiotherapies to Improve Function in Young Children With Cerebral Palsy	N/A
Completed	`NCT04012125` - The Effect of Flexible Thoracolumbar Brace on Scoliosis in Cerebral Palsy	N/A
Enrolling by invitation	`NCT05619211` - Piloting Movement-to-Music With Arm-based Sprint-Intensity Interval Training Among Children With Physical Disabilities	Phase 1
Completed	`NCT04489498` - Comparison of Somatometric Characteristics Between Cerebral Palsy and Normal Children, Cross-sectional, Multi Center Study
Completed	`NCT03677193` - Biofeedback-enhanced Interactive Computer-play for Youth With Cerebral Palsy	N/A
Recruiting	`NCT06450158` - Robot-assisted Training in Children With CP	N/A
Completed	`NCT04093180` - Intensive Neurorehabilitation for Cerebral Palsy	N/A
Completed	`NCT02909127` - The Pediatric Eating Assessment Tool
Not yet recruiting	`NCT06377982` - Human Umbilical Cord Blood Infusion in Patients With Cerebral Palsy	Phase 1
Not yet recruiting	`NCT06007885` - Examining Capacity Building of Youth With Physical Disabilities to Pursue Participation Following the PREP Intervention.	N/A
Not yet recruiting	`NCT03183427` - Corpus Callosum Size in Patients With Pineal Cyst	N/A
Active, not recruiting	`NCT03078621` - Bone Marrow-Derived Stem Cell Transplantation for the Treatment of Cerebral Palsy	Phase 1/Phase 2

Clinical trials are conducted in a series of steps, called phases - each phase is designed to answer a separate research question.

Phase 1: Researchers test a new drug or treatment in a small group of people for the first time to evaluate its safety, determine a safe dosage range, and identify side effects.
Phase 2: The drug or treatment is given to a larger group of people to see if it is effective and to further evaluate its safety.
Phase 3: The drug or treatment is given to large groups of people to confirm its effectiveness, monitor side effects, compare it to commonly used treatments, and collect information that will allow the drug or treatment to be used safely.
Phase 4: Studies are done after the drug or treatment has been marketed to gather information on the drug's effect in various populations and any side effects associated with long-term use.

Effects of an Adapted Ski/Snowboarding Program on Quality of Life in Children With Physical Disabilities

Clinical Trial Summary

Clinical Trial Description

Study Design

Related Conditions & MeSH terms