Stroke Clinical Trial
Official title:
Consequences of the COVID-19 Lockdown on Health and Well-being of Patients With Parkinson Disease and Post-stroke
The study aimed at describing the effects of the COVID-19 social distancing on function, health and well-being of patients with Parkinson's disease or post-stroke, and test the association between the patient activation level and these effects.An anonymous survey was distributed through social media and patient associations.Community-living patients with Parkinson's disease or post-stroke were invited to answer the survey.
People with chronic diseases like Parkinson's disease or post-stroke rely on routine medical
and rehabilitative care to maintain daily function and health. These are important aspects of
self-management. However, this was challenged by the social distancing due to COVID-19, which
limited participation in regular routines.
The study objectives were: To (1) describe the effects of the COVID-19 social distancing on
function, health and well-being of patients with Parkinson's disease or post-stroke, and (2)
test the association between the patient activation level and these effects.
Community-living patients with Parkinson's disease or post-stroke were invited to answer an
anonymous survey through social media and patient associations. Part 1 included 27
multiple-choice questions regarding current status and changes in function, health, medical
care and well-being. Part 2 consisted of the Patient Activation Measure, describing people's
knowledge, skill, and confidence in managing their own health.
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