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NCT03677232 Clinical Trial

The Living Experience of Hong Kong Chinese Adolescents With CHD.

Quality of Life Clinical Trial

Official title:
The Living Experience of Hong Kong Chinese Adolescents With CHD.

Clinical Trial Details — Status: Completed

Administrative data
NCT number NCT03677232
Other study ID # UW 17-290
Secondary ID
Status Completed
Phase
First received
Last updated
Start date August 11, 2017
Est. completion date August 31, 2018

Study information
Verified date September 2018
Source The University of Hong Kong
Contact n/a
Is FDA regulated No
Health authority
Study type Observational [Patient Registry]

Clinical Trial Summary

This study aims to explore the impacts of CHD and its limitations on adolescents and the living experience of adolescents living with CHD.

Hong Kong Chinese adolescents with CHD are having reduced psychological well-being and quality of life than their healthy counterparts. Qualitative study is therefore needed to explore how CHD may impact on the adolescents' psychological well-being and quality of life.

Description:

A qualitative study was adopted. Purposive sampling of 30 adolescents with CHD were done. Thematic analysis was used for data analysis. The participants unfold negative impacts of CHD and its treatments, and the challenges they were facing with their relationship with others.

Recruitment information / eligibility
Status Completed
Enrollment 30
Est. completion date August 31, 2018
Est. primary completion date August 31, 2018
Accepts healthy volunteers No
Gender All
Age group 12 Years to 18 Years
Eligibility Inclusion Criteria:

- Hong Kong Chinese adolescents

- aged 12 to 18

- able to read and write Chinese

- attending outpatient clinic of Department of Pediatric Cardiology

Exclusion Criteria:

- adolescents with non-structural heart disease

- with developmental delay or comorbid medical conditions

Study Design

Related Conditions & MeSH terms

Locations
Country Name City State
Hong Kong University of Hong Kong Hong Kong

Sponsors (1)
Lead Sponsor Collaborator
The University of Hong Kong

Country where clinical trial is conducted

Hong Kong, 

Outcome
Type Measure Description Time frame Safety issue
Primary living experience of adolescents with CHD Participants were asked to describe their living experiences with CHD and how has CHD affected their quality of life and psychological well-being during the semi-structure interview. 1 day
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