Pain Clinical Trial
Official title:
Exploring the Desirability, Feasibility and Practicalities of Using Information and Communication Technology (ICT) to Improve Cancer Pain Management in the Community
This interview and focus group study will explore patient, caregiver, and health professional opinions about the potential roles of digital technology to support effective cancer pain management. The views, opinions, and ideas expressed in this study will be used to design and develop a digital intervention which is likely to take the form of a measurement (pain and analgesic use) guided medication management intervention to improve cancer pain management in the community.
Cancer is increasing in incidence and prevalence in the United Kingdom. Pain is the most
frequent complication of cancer and cancer pain control is frequently suboptimal. Previous
research has established several potentially modifiable reasons for suboptimal cancer pain
management. These include: under-reporting of pain; inadequate communication about pain
between patients and health care professionals ; inadequate assessment of pain by health
care providers; inadequate analgesic prescribing; suboptimal adherence to prescribed
analgesic regimens by patients; and failure to re-assess pain timeously.
Information and communication technology (ICT) is a term used to describe all digital
technologies that facilitate the electronic capture, processing, storage, and exchange of
information. ICT could offer innovative solutions to suboptimal cancer pain management.
Technological solutions might include electronic diaries, available as applications or
"apps", which could encourage pain self-monitoring by people with cancer, and prompt medical
assessment when pain is poorly controlled. Accurate patient reported pain data could help
professionals to adequately assess pain and might influence the patient-professional
consultation. Feedback of adherence data to patients and carers might improve the way that
medications are used. Electronic medication adherence devices are currently available which
can capture data on analgesic utilisation and timing. This data might be useful for health
care professionals to inform safe and timely adjustments of analgesic doses (i.e. is pain
control poor because of inadequate analgesic dose or because of non-adherence to the
prescribed regime?). The aim of the proposed study is to explore the desirability,
feasibility, and practicalities of using ICT to improve cancer pain management The proposed
study would seek the views of patients with cancer pain, their caregivers, and health care
professionals, about using technology to help with cancer pain management. The study will
investigate the acceptability of electronic pain diaries and electronic medication adherence
devices to patients and health care professionals, barriers to using such technology, and
how data generated from technology might be used by patients, caregivers, and health care
professionals to improve cancer pain management. This study will form part of a programme of
research and data from the proposed study will be used to inform the potential development
of a technological intervention to improve the management of cancer pain in the community.
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