Underutilization of Hospice Care in Older Black Adults

Aging Clinical Trial

Official title:

Knowledge of and Attitudes Toward Hospice, Decision-making Around Hospice in Older Black Adults

Clinical Trial Details — Status: Active, not recruiting

Administrative data

• NCT number: NCT06408090
• Other study ID #: 23-0899
• Status: Active, not recruiting
• Phase: N/A
• Start date: June 2, 2023
• Est. completion date: June 1, 2026

Study information

• Verified date: May 2024
• Source: University of Colorado, Denver
• Contact: n/a
• Is FDA regulated: No
• Study type: Interventional

Clinical Trial Summary

This study will sample older Black adults to test their knowledge and opinions of hospice.

Description:

Short stays in hospice strain the Medicare system. Black adults over age 65 are one of the fastest growing groups in the US. Despite greater disease burden than their White peers, older Black adults are less likely to enroll in hospice. Misconceptions about hospice and mistrust may contribute to this disparity. The research will seek to understand older Black adults' decision-making processes around hospice. The PtDA is a tool to assist in this decision-making process. The influence of this tool will be measured as well. The sample of older Black adults will represent the national population. The research will explore various subgroups, which previous research has been unable to address. This study will use four validated survey batteries. About 200 of the 400 participants will also review the decision aid. These adults will complete a second survey. About 20 of these adults will also complete an interview about the decision aid. Through the surveys and interviews, this research will explore barriers to hospice usage for older Black adults.

Recruitment information / eligibility

• Status: Active, not recruiting
• Enrollment: 400
• Est. completion date: June 1, 2026
• Est. primary completion date: September 30, 2024
• Accepts healthy volunteers: Accepts Healthy Volunteers
• Gender: All
• Age group: 65 Years to 99 Years

Eligibility

Inclusion Criteria:

• Identifies as Black or African American

• Can read and write English

Exclusion Criteria:

• Unable to read/write English

• Have a cognitive impairment that prevents them from providing informed consent

Related Conditions & MeSH terms

• Aging
• Attitude
• Decision Aid
• Decision-Making
• Hospice Care
• Knowledge

Intervention

Other:
• IDECIDE-HOSPICE
12-pg educational booklet detailing information about hospice including what hospice is, why someone would use hospice, who pays for hospice, and where hospice services are delivered

Locations

Country	Name	City	State
United States	University of Colorado Denver | Anschutz Medical Campus	Aurora	Colorado

Sponsors (1)

Lead Sponsor	Collaborator
University of Colorado, Denver

Country where clinical trial is conducted

United States, 

Outcome

Type	Measure	Description	Time frame	Safety issue
Primary	Hospice Knowledge	assessed using 23-item hospice knowledge survey	June 2023 through September 2023
Primary	Hospice Beliefs and Attitudes	measured using 8-item Hospice Beliefs and Attitudes Scale (HBAS)	June 2023 through September 2023
Primary	Self-Efficacy	assessed using 11-item Decision Self-Efficacy Scale (DSE)	June 2023 through September 2023
Secondary	Medical Mistrust	measured using 17-item Medical Mistrust Index (MMI)	June 2023 through September 2023