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Pregnancy in Women With Rare Multisystemic Vascular Diseases: COGRare5 Study — COGRare5  

Marfan Syndrome Clinical Trial

Official title:
A National Prospective Cohort for Pregnancies in Patients With Rare Vascular Anomalies: COGRare5 Study

Clinical Trial Summary

There are no prospective studies of pregnancies for the diseases studied here in (Heredity Hemorrhagic Telangiectasia, Marfan syndrome, primary lower limb lymphedema, superficial arteriovenous malformations, and cerebro-spinal arteriovenous malformations) although complications of these can present life-threatening health problems for the mother and her baby.

The purpose of this National prospective study is to obtain greater insight into obstetrical complications associated with rare maternal vascular genetic disorders in order to improve prevention and to reduce risk of death.

In this context, experts and patient associations consider that there is a need to make real progress in the formulation of recommendations based on scientific data.

Clinical Trial Description

n/a

Study Design

Related Conditions & MeSH terms

Clinical Trial Details
NCT number NCT04194619
Study type Observational
Source Hospices Civils de Lyon
Contact Sophie DUPUIS-GIROD, Dr
Phone 04 27 85 65 25
Email sophie.dupuis-girod@chu-lyon.fr
Status Not yet recruiting
Phase
Start date January 2020
Completion date September 2026
View Details
See also
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