Stroke, Acute Clinical Trial
Official title:
Stroke in Egyptian Clinical REgisTry
This is a multi-institutional registry database for the patients with stroke and
cerebrovascular diseases. Stroke is the second leading cause of death in the Egypt. Despite
extensive research, most of the patients die or suffer from varying degree of post-stroke
disabilities due to neurologic deficits.
This registry aims to understand the disease and examine the disease dynamics at the National
Level. additionally it aim to introduce an objective method for classifying the registered
hospital on a spectrum of 6 level coded with colors (from Black to Green ) according the
availability of the predetermined 5 bundles of services presented for patient
A clinical registry is an observational database, usually focusing on a clinical condition,
procedure, therapy, or population. A stroke registry can be defined as "an organized system
for the collection, storage, retrieval, analysis, and dissemination of information on
individual patients who have had a stroke".
An ideal stroke registry is nationwide and enrolls patients from as many participating
hospitals as possible in order to increase representativeness and avoid selection bias. For
example, the Risk-Stroke register in Sweden, launched in 1994, has covered all hospitals that
admit acute stroke patients across the country since 1998 . Appropriate data structure and
governance policies are needed to keep a nationwide stroke registry sustainable and operating
well. Through the publication and communication of results, a stroke registry should be
helpful for improvement of stroke care quality, health policy, and the outcomes of patients.
SECRET registry aim to help in the following
1. National Grading of The Presented Stroke Care Services:
where A 6 levels grading system was designed according to the capability of each service
spot (hospital, center, etc.) to present a range of the 5 stroke service bundles of
care. each Service Spot (SS) will have one of the following colors according to the
availability of the services.
2. Cost-effectiveness registry Based SOPs SECRET is the first of its type registry to study
the parameters for cost/effectiveness analysis for specific steps in the chain of care
for stroke patient. The only convincing tool which could be used to approach the
politics to be attentive and malleable for changing national plans of healthcare.
3. Aneurysm Registry This Part of the registry is dedicated for the cerebral aneurysm
disorders and their type of clinical presentation. The options of treatment and each
option effectiveness and cost outcome.
CFD for Best Medical Treatment Registry To investigate the possible application collected
from CFD analysis in special situation to guide physician for best medical treatment (BMT)
option for a Neurovascular Disorder.
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