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Clinical Trial Details — Status: Recruiting

Administrative data

NCT number NCT01558479
Other study ID # 36777
Secondary ID
Status Recruiting
Phase
First received
Last updated
Start date September 2009
Est. completion date October 31, 2026

Study information

Verified date May 2024
Source University of Washington
Contact Jennifer Pate
Phone 1-855-646-4221
Is FDA regulated No
Health authority
Study type Observational

Clinical Trial Summary

The Parkinson's Genetic Research Study (PaGeR), headed by Dr. Cyrus Zabetian, is searching for genes that increase the risk of developing Parkinson's disease (PD) and related disorders. The study is a joint effort by neurologists and researchers across the United States and is sponsored by the National Institutes of Health. The coordinating center for PaGeR is located at the University of Washington and the VA Puget Sound Health Care System in Seattle.


Description:

PaGeR is focusing on families in which two or more people have been diagnosed with PD. Past research suggests that such "multiplex" families might hold the key to the discovery of new PD genes. To take part in PaGeR, participants will be asked to complete a questionnaire and to undergo an interview, a neurological exam, a short memory test, and a blood draw. Enrollment in the study usually takes between one and two hours. There is no cost to participate, and all study information is kept strictly confidential. There are a number of designated sites across the country where families can enroll. However, for family members who are unable to travel to one of these sites, other arrangements can be made.


Recruitment information / eligibility

Status Recruiting
Enrollment 5000
Est. completion date October 31, 2026
Est. primary completion date October 31, 2026
Accepts healthy volunteers Accepts Healthy Volunteers
Gender All
Age group 18 Years and older
Eligibility Inclusion Criteria: - Over 18 years of age - Member of a family in which there are two or more living individuals who have been diagnosed with Parkinson's disease Exclusion Criteria: - Under 18 years of age

Study Design


Related Conditions & MeSH terms


Locations

Country Name City State
United States Emory University/ Wesley Woods Health Center Atlanta Georgia
United States University of Cincinnati Cincinnati Ohio
United States Portland VA Medical Center Portland Oregon
United States University of Washington Seattle Washington
United States VA Puget Sound Health Care System Seattle Washington

Sponsors (1)

Lead Sponsor Collaborator
University of Washington

Country where clinical trial is conducted

United States, 

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