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Clinical Trial Summary

The research study is being conducted to compare methods of virtual genetic counseling for people with Parkinson's disease.


Clinical Trial Description

This research will evaluate different virtual methods of pre-test genetic counseling and post-test genetic results disclosure in people with Parkinson's disease. Participants will be randomized to receive different methods of genetic counseling using web-based, telephone, or telehealth methods. In both pre- and post-test counseling phases, remote genetic counseling methods will be compared to demonstrate equivalence. The primary outcomes will be equivalence on genetics knowledge and outcomes scales, and the revised impact of events scale. The purpose is to develop effective and scalable approaches to genetic counseling. This work is crucial for patient safety and will improve access to care through novel genetic counseling approaches. ;


Study Design


Related Conditions & MeSH terms


NCT number NCT04527146
Study type Interventional
Source University of Pennsylvania
Contact
Status Completed
Phase N/A
Start date January 1, 2021
Completion date November 1, 2023

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