Neuromuscular Diseases Clinical Trial
Official title:
Muscular Dystrophy Translational Research Program Neuromuscular Research Biobank
The purpose of this research repository is to collect, store, and share with other researchers any tissues that subjects with all types of neuromuscular disease are willing to donate. These samples will be stored at Virginia Commonwealth University (VCU) and will be used for future research with this population.
The study involves collection of medical information about research participants and their families. No identifying information about family members will be collected. Research participants will be asked for any general knowledge they have related to possible neurological disorders. Research participants are also given the opportunity to provide blood, skin cells, urine, saliva, fecal matter, muscle tissue, cells, DNA and/or RNA samples. Before any study procedures take place, the informed consent form will be provided and reviewed with potential research participants in detail. Potential research participants will have an opportunity to ask additional questions before starting any study procedures. ;
| Status | Clinical Trial | Phase | |
|---|---|---|---|
| Active, not recruiting |
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| Completed |
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| Recruiting |
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| Active, not recruiting |
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N/A | |
| Completed |
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| Recruiting |
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Perceptions of the Clinical and Psychosocial Impact of Covid-19 in Patients With Neuromuscular and Neurological Disorders
|
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| Enrolling by invitation |
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Reliability and Validity of the Turkish Version of the PedsQL 3.0 Neuromuscular Module for 2-to 4- Year-old
|
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| Completed |
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Efficacy of Vaccination Against COVID-19 in Patients Presenting a Neuromuscular Disease With Severe Amyotrophy
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| Recruiting |
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|
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| Completed |
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|
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| Enrolling by invitation |
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N/A | |
| Completed |
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| Recruiting |
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| Not yet recruiting |
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| Recruiting |
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| Completed |
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| Terminated |
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