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Clinical Trial Summary

The number of people that use a ventilator (a machine that supports breathing) at home is increasing in Canada and around the world. These individuals have complex health problems, require a lot of care and they use the healthcare system often. Competent family caregivers (FC) are essential for successful caring for individuals with NMD using HMV. However, family caregiving is known to contribute to significant FC burden and social isolation, and negatively affects FC health. COVID-19 physical distancing has increased the care burden and social isolation for many FCs. Infrastructure to support FCs is paramount to ensure that individuals with NMD using HMV can safely remain at home. Peer support includes emotional and informational support by an individual that has experienced a similar health problem. It improves health-related quality of life, increases self-efficacy and empowerment, and decreases stress in various patient and caregiver populations. With our study we plan to educate and empower HMV dependent individuals and their caregivers and develop a comprehensive peer support program.

Clinical Trial Description


Study Design

Related Conditions & MeSH terms

NCT number NCT05070624
Study type Interventional
Source The Hospital for Sick Children
Contact Munazzah Ambreen, MD.,MSc
Phone 4164342542
Email [email protected]
Status Not yet recruiting
Phase N/A
Start date October 15, 2021
Completion date April 30, 2023

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