Orthopedic Complications in Cerebral Palsy Clinical Trial
Official title:
Longitudinal Study of a Children Population With Bilateral Severe Cerebral Palsy: Incidence and Evolution of Orthopaedic Complications and Pain Related With These Complications.
" Cohort CP " is a multicentre cohort study, initiated by the Hospices Civils de Lyon in
September 2009. Population targeted are children with bilateral cerebral palsy, level GMFCS
IV or V, aged from 2 to 10 years at inclusion. They are followed-up during 10 years, at the
rhythm of 1 visit per year. At each visit are collected clinical, orthopaedic, radiological
and environmental data.
The primary objective is to establish the incidence of orthopaedic complications (scoliosis
and hip joint) depending on patients' age.
Secondary objectives are to describe the sequences over time of these complications and the
related pain, to explore the impact of nutrition, surgery, asymmetric postures and
environmental factors, and to describe the medical and rehabilitative follow-up of these
patients.
385 patients are expected by the end of 2020. We expect of this long-term follow-up to gain
tools that permit to improve patient's care and patient's quality of life, by putting in
place preventing actions and adapted treatments related to their own pathologies.
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