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Clinical Trial Summary

Parents of children with neuromuscular disease have been already at risk of depression, anxiety and burden. Additionally, the daily lives of children with neuromuscular disease and their parents have been significantly affected by the COVID-19 pandemic. Therefore, this study investigated parents' perspective on the effect of the COVID-19 pandemic on children with neuromuscular diseases and themselves.

Clinical Trial Description

The 55-item survey created by the researchers was applied online to determine the psychological and physical effects of COVID-19 on neuromuscular patients and their families. This survey also included the Content of the 9-Item Caregiver COVID-19 Limitations Scale (CCLS-9). ;

Study Design

Related Conditions & MeSH terms

NCT number NCT05771727
Study type Observational
Source Hacettepe University
Status Completed
Start date July 1, 2021
Completion date October 1, 2021

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