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Symptoms and Outcome Measures for Upper- Limb Function in Myotonic Dystrophy Type 1 — SOUL-DM1  

Myotonic Dystrophy 1 Clinical Trial

Official title:
Symptoms and Outcome Measures for Upper- Limb Function in Myotonic Dystrophy Type 1

Clinical Trial Summary

Myotonic Dystrophy type 1 (DM1) is a multisystem disease that causes muscle weakness and myotonia. As a result upper limb function might become impaired. In this study we will examine patients with DM1 and record their upper limb function. We will will use a battery of patient reported outcomes (PROs) and Outcome measures (OMs) in order to evalute which ones are suitable for use in clinical practise and research studies.

Clinical Trial Description

n/a

Study Design

Related Conditions & MeSH terms

Clinical Trial Details
NCT number NCT05006924
Study type Observational
Source Oslo University Hospital
Contact Hanne L Fossmo, MSC
Phone +47 93630606
Email halufo@ous-hf.no
Status Recruiting
Phase
Start date October 2021
Completion date December 2026
View Details
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