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Management of Patients With Alpha-1 Antitrypsin Deficiency Associated Emphysema

Emphysema Clinical Trial

Official title:
Management of Patients With Alpha-1 Antitrypsin Deficiency Associated Emphysema. A National Registry.

Clinical Trial Summary

The aim of this study is to describe the natural history of patients with alpha-1 antitrypsin associated emphysema and to figure out associated prognostic factors.

Clinical Trial Description

All patients who suffer from this disease are followed every 6 months during a 5 years period. FEV1 decline is the primary endpoint. Quality of life assessed using the Saint George's Respiratory Questionary is recorded too. ;

Study Design

Observational Model: Cohort, Time Perspective: Prospective

Related Conditions & MeSH terms

Clinical Trial Details
NCT number NCT00700934
Study type Observational
Source Assistance Publique - Hôpitaux de Paris
Contact Gabriel Thabut, MD
Phone 1 40 87 57 12
Email g.thabut@bch.aphp.fr
Status Recruiting
Phase N/A
Start date February 2005
Completion date February 2012
View Details
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