Cancer Clinical Trial
Official title:
How do Stories of Survival Help Patients Going Through Bone Marrow Transplant?
Allograft transplants are offered to people with haematological cancers sometimes as the best
chance of a cure. However, the survival rates for these procedures can be quite poor, as the
transplant, in itself, can be lifethreatening.
In addition, these procedures usually involve a period of lengthy hospitalisation accompanied
by a host of debilitating conditions which patients must cope with in isolation due to their
increased risk of serious infection. Perhaps unsurprisingly, there is considerable evidence
that mood plays a role in the way people recover.
I wish to investigate the psychological impact of providing testimonies from survivors of
transplants to patients undergoing the procedure.
The plan is initially to collect about 10-15 testimonials from past transplant patients using
a videotaped structured interview then to collate these testimonials into a booklet format
and DVD.
This booklet and DVD would be used as an intervention where 40 consecutive patients who are
going ahead for transplant are invited to receive the testimonial intervention.
Patients will be asked to complete one mood measure (the HADS), the Life Orientation Test
(LOT), and a questionnaire about expectations of treatment in clinic once a decision to
proceed to transplant has been made. Patients will receive the testimonies upon admittance to
the transplant unit and then receive the HADS and a structured interview within the first
week of being admitted to the transplant ward (just prior to receiving the transplant) and
within the first two weeks following the transplant.
Comparative analyses of the measures between the three time points would be performed and
qualitative analysis of the structured interview data.
Around 80 people undergo transplant each year, it is estimated that the project will be
completed by September 2016. The intention would be to publish following completion.
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