Alport Syndrome Treatments and Outcomes Registry — ASTOR  

Alport Syndrome Clinical Trial

Official title: Alport Syndrome Treatments and Outcomes Registry

Status Recruiting

Clinical Trial Summary

ASTOR's primary purpose is to enroll families and patients with a history of Alport syndrome in a central registry. The information we gather will be used as a basis for studies designed to test potential treatments for Alport syndrome. ASTOR also aims to provide patients, families and physicians with the most up-to-date information about Alport syndrome.

Clinical Trial Description

The University of Minnesota's Department of Pediatrics has created the Alport Syndrome Treatments and Outcomes Registry (ASTOR). ASTOR's primary purpose is to enroll families and patients with a history of Alport syndrome in a central registry. The information we gather will be used as a basis for studies designed to test potential treatments for Alport syndrome. ASTOR also aims to provide patients, families and physicians with the most up-to-date information about Alport syndrome.

You can help doctors learn more about Alport syndrome and test possible treatments for the disease by enrolling in ASTOR. Since Alport syndrome is a rare disease it is essential for ASTOR to enroll as many patients as possible. Together, you and others facing the challenges of Alport syndrome can provide valuable information that will help doctors better understand the disease and in turn, help patients with Alport syndrome now and in the future. ;

Related Conditions & MeSH terms

• Alport Syndrome
• Nephritis, Hereditary
• Syndrome

• NCT number: NCT00481130
• Study type: Observational [Patient Registry]
• Source: University of Minnesota
• Contact: Sarah Lemmage
• Phone: 612-626-7632
• Email: lemmage@umn.edu
• Status: Recruiting
• Start date: September 2007
• Completion date: January 2030