Outcome
Type |
Measure |
Description |
Time frame |
Safety issue |
Primary |
Participation at 6 months after hospital discharge |
Patient participation score, measured by the score obtained in the "participation" dimension of the stroke-specific quality of life scale: Stroke Impact Scale 6 months after discharge from hospital |
6 months |
|
Secondary |
Participation at 12 months |
Participation score at 12 months after discharged home |
12 months |
|
Secondary |
Quality of life at 6 months after hospital discharge: Stroke Impact Scale (SIS) |
Score of the other dimensions of the Stroke Impact Scale (SIS) at 6 months: force dimension, manual function, daily activities, mobility, communication, emotions, memory/thinking and global recovery. |
6 months |
|
Secondary |
Quality of life at 12 months after hospital discharge: Stroke Impact Scale (SIS) |
Score of the other dimensions of the Stroke Impact Scale (SIS) at 12 months: force dimension, manual function, daily activities, mobility, communication, emotions, memory/thinking and global recovery. |
12 months |
|
Secondary |
Anxiety and depression scores at 6 months after hospital discharge |
Change of anxiety and depression scores between discharge home and 6 months measured by the Hospital Anxiety and Depression scale (HADS) score. |
6 months |
|
Secondary |
Anxiety and depression scores at 12 months after hospital discharge |
Change of anxiety and depression scores between discharge home and 12 months measured by the Hospital Anxiety and Depression scale (HADS) score. |
12 months |
|
Secondary |
Fatigue at 6 months after hospital discharge |
Changes in fatigue level measured by the Pichot scale between discharge home and 6 months |
6 months |
|
Secondary |
Fatigue at 12 months after hospital discharge |
Changes in fatigue level measured by the Pichot scale between discharge home and 12 months |
12 months |
|
Secondary |
Sleep quality at 6 months after hospital discharge: Pittsburgh scale |
Sleep quality measured by the Pittsburgh scale between discharge home and 6 months |
6 months |
|
Secondary |
Sleep quality at 12 months after hospital discharge: Pittsburgh scale |
Sleep quality measured by the Pittsburgh scale between discharge home and 12 months |
12 months |
|
Secondary |
Sleepiness at 6 months after hospital discharge |
Sleepiness level measured by the Epworth scale between discharge home and 6 months |
6 months |
|
Secondary |
Sleepiness at 12 months after hospital discharge |
Sleepiness level measured by the Epworth scale between discharge home and 12 months |
12 months |
|
Secondary |
Prognosis at 12 months after hospital discharge (Stroke recurrence) |
Stroke recurrence within 12 months, reported by the patient and/or caregiver and validated by checking the hospitalization report. |
12 months |
|
Secondary |
Prognosis at 12 months after hospital discharge (hospitalizations) |
Unscheduled hospitalizations or emergency room visits within 12 months of discharge from hospital. |
12 months |
|
Secondary |
Prognosis at 12 months after hospital discharge (neurologic disability) |
Modified Rankin Score at 12-month |
12 months |
|
Secondary |
Prognosis at 12 months after hospital discharge (death) |
Death at 12 months |
12 months |
|
Secondary |
Cognitive disorders at hospital discharge |
Cognitive disorders at discharge from hospital measured by the Montreal Cognitive Assessment (MOCA) scale |
1 day |
|
Secondary |
Cognitive disorders at 12 months after hospital discharge |
Cognitive disorders at 12 months measured by the Montreal Cognitive Assessment (MOCA) scale |
12 months |
|
Secondary |
Access to care at 12 months after hospital discharge |
Consumption of care (consultations and hospitalizations) collected from the regional health insurance database |
12 months |
|
Secondary |
Access to social services at 12 months after hospital discharge |
Requests for social support made |
12 months |
|
Secondary |
Maintaining hospital discharge prescriptions at 6 months after hospital discharge |
Therapeutic persistence: maintenance of therapeutic prescriptions for discharge from hospital at 6 months. The prescriptions for secondary preventive treatment of stroke will be considered. Data will be collected by interviewing the patient. |
6 months |
|
Secondary |
Maintaining hospital discharge prescriptions at 12 months after hospital discharge |
Therapeutic persistence: maintenance of therapeutic prescriptions for discharge from hospital at 12 months. The prescriptions for secondary preventive treatment of stroke will be considered. Data will be collected by interviewing the patient. |
12 months |
|
Secondary |
Occupational status at 12 months after hospital discharge |
Occupational status at 12 months: return to work will be defined by working at least one day per week. Among these patients, resumption of the same professional activity, professional reclassification or adapted working time, early retirement. |
12 months |
|
Secondary |
Social isolation at discharge from hospital |
Social isolation at discharge from hospital measured by the Social Support score Questionnaire 6 |
1 day |
|
Secondary |
Social isolation at 6 months after hospital discharge |
Social isolation at 6 months after discharge from hospital measured by the Social Support score |
6 months |
|
Secondary |
Social isolation at 12 months after hospital discharge |
Social isolation at 12 months after discharge from hospital measured by the Social Support score |
12 months |
|
Secondary |
Patient activation level at discharge from hospital |
Patient activation will be measured by the score obtained at the "Patient activation Measure" scale. This questionnaire is composed of 22 items that assess the patient's knowledge, skills and confidence level to manage their own situation (self-management). |
1 day |
|
Secondary |
Patient activation level at 6 months after hospital discharge |
Patient activation will be measured by the score obtained at the "Patient activation Measure" scale. This questionnaire is composed of 22 items that assess the patient's knowledge, skills and confidence level to manage their own situation (self-management). |
6 months |
|
Secondary |
Patient activation level at 12 months after hospital discharge |
Patient activation will be measured by the score obtained at the "Patient activation Measure" scale. This questionnaire is composed of 22 items that assess the patient's knowledge, skills and confidence level to manage their own situation (self-management). |
12 months |
|
Secondary |
Maintenance at home at 12 months after hospital discharge |
Data concerning the patient's place of residence 12 months after hospital discharge will be collected by interviewing the patient |
12 months |
|
Secondary |
Satisfaction with the support received upon return home: ad-hoc questionnaire |
Satisfaction with the support received upon return home, measured at 12 months by an ad-hoc questionnaire |
12 months |
|
Secondary |
Feeling towards information at 6 months after hospital discharge: ad-hoc questionnaire |
Feeling of information about stroke and medical and social care at 6 months through an ad-hoc questionnaire |
6 months |
|
Secondary |
Feeling towards information at 12 months after hospital discharge: ad-hoc questionnaire |
Feeling of information about stroke and medical and social care at 12 months through an ad-hoc questionnaire |
12 months |
|