Women With Congenital Heart Diseases Clinical Trial
Official title:
The Life Experience of Young Women (Age 18-38) Who Live With Congenital Heart Disease
This research will focus on young women between the ages of 18-38 who underwent a heart operation and their life experiences. This research will focus on these life events and the paradigm of these women being raised as "heart sick," and consequently lacking self-esteem (Frigiola, Bull, & Wray, 2014; Hickey et al., 2012). Most qualitative studies focusing on the quality of life compare men and women, completely ignoring women's body image and the experience of womanhood (Hickey et al., 2012; Hövels-Gürich et al., 2007; Sarikouch, et al., 2013). This study aims to focus on women's stories about their life experiences and the influence of surgery(ies) on their daily life using an the qualitative phenomenological approach.
| Status | Recruiting |
| Enrollment | 15 |
| Est. completion date | October 2017 |
| Est. primary completion date | September 2017 |
| Accepts healthy volunteers | No |
| Gender | Female |
| Age group | 18 Years to 38 Years |
| Eligibility |
Inclusion Criteria: - Atrial septal defect or ASD, - Ventricle septal defect or VSD, - Tetralogy of Fallot or TOF - Translocation of great arteries or TGA - underwent heart operation - Hebrew speakers that are able to understand the meanings of the questions and tell their life stories. Exclusion Criteria: - Non Hebrew speakers - Did not underwent heart surgery. |
Observational Model: Cohort, Time Perspective: Retrospective
| Country | Name | City | State |
|---|---|---|---|
| Israel | Hillel Yaffe MC, | Hadera |
| Lead Sponsor | Collaborator |
|---|---|
| Hillel Yaffe Medical Center |
Israel,
| Type | Measure | Description | Time frame | Safety issue |
|---|---|---|---|---|
| Primary | Interview about the life experience of young women (age 18-38) who live with congenital heart disease and overwent an open heart operation. | 1day, at the time of the interview | Yes |