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Clinical Trial Summary

The New International CTEPH Database is a prospective, observational multi-center disease registry run by the International CTEPH Association (ICA), which will collect data in chronic thromboembolic pulmonary hypertension (CTEPH) patients worldwide. The registry will run for approximately 5 years. Its objective is to provide an overview on epidemiology of CTEPH, mode of diagnosis and treatment approaches worldwide as well as determinants of long-term outcomes as measured by New York Heart Association (NYHA) functional class and survival. The data collected will improve the knowledge and understanding of this condition, support the further development of diagnosis and treatment guidelines for patients with CTEPH, and contribute to improving patient care in the long-term.


Clinical Trial Description

n/a


Study Design


Related Conditions & MeSH terms


NCT number NCT02656238
Study type Observational [Patient Registry]
Source International CTEPH Association
Contact
Status Completed
Phase
Start date February 2015
Completion date January 2020

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