Turner Syndrome Clinical Trial
Official title:
INSIGHTS Registry - Inspiring New Science In Guiding Healthcare in Turner Syndrome
INSIGHTS is a registry research study that collects key information on medical history for girls and women with Turner syndrome and the clinical care they receive. This includes genetic tests, imaging, medications, and more for hundreds of patients seen at a number of clinics across the US. In addition to learning a lot about the current state of health for individuals with TS, INSIGHTS serves as an infrastructure to conduct future studies are meaningful to patients and their families.
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Status | Clinical Trial | Phase | |
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Completed |
NCT01734486 -
Growth Response in Girls With Turner Syndrome
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Phase 4 | |
Completed |
NCT01678261 -
X-chromosome Inactivation, Epigenetics and the Transcriptome
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N/A | |
Completed |
NCT01419249 -
First Year Growth Response Associated Genetic Markers Validation Phase IV Open-label Study in Growth Hormone Deficient and Turner Syndrome Pre-pubertal Children: the PREDICT Pharmacogenetics Validation Study
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Phase 4 | |
Completed |
NCT01518036 -
Use of Somatropin in Turner Syndrome
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Phase 3 | |
Recruiting |
NCT04948658 -
Gonadal Tissue Freezing for Fertility Preservation in Individuals at Risk for Ovarian Dysfunction, Premature Ovarian Insufficiency and Clinically Indicated Gonadectomy
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Completed |
NCT01563926 -
Evaluating Acceptance of New Liquid Somatropin Formulation in Children With Growth Hormone Deficiency
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Phase 3 | |
Completed |
NCT02787486 -
Expanded Noninvasive Genomic Medical Assessment: The Enigma Study
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Completed |
NCT00877942 -
Sex Differences in Early Brain Development; Brain Development in Turner Syndrome
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N/A | |
Completed |
NCT00825617 -
Quantitative Liver Functions in Turner Syndrome With and Without Hormone Replacement Therapy
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N/A | |
Recruiting |
NCT04463316 -
GROWing Up With Rare GENEtic Syndromes
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Enrolling by invitation |
NCT03836300 -
Parent and Infant Inter(X)Action Intervention (PIXI)
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N/A | |
Completed |
NCT01245374 -
Norditropin NordiFlex® Device Compared to the Device Previously Used by Patients or Parents
|
Phase 4 | |
Completed |
NCT01322165 -
National Registry of Genetically Triggered Thoracic Aortic Aneurysms and Cardiovascular Conditions
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N/A | |
Terminated |
NCT00419107 -
Beta Cell Function in Women With Turner Syndrome
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N/A | |
Active, not recruiting |
NCT00625001 -
Long Term Follow-up of Bone Mineral Density in Hormone Treated Turner Syndrome
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N/A | |
Completed |
NCT00029159 -
The Effect of Androgen and Growth Hormone on Height and Learning in Girls With Turner Syndrome
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Phase 3 | |
Completed |
NCT01518062 -
Safety of Somatropin and Induction of Puberty With 17-beta-oestradiol in Girls With Turner Syndrome
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Phase 4 | |
Completed |
NCT00471731 -
Dry Eye in Women With Turner Syndrome and Women With Premature Ovarian Failure
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N/A | |
Completed |
NCT00256126 -
Predictive Markers in Growth Hormone Deficiency (GHD) and Turner Syndrome (TS) Children Treated With SAIZEN®
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Phase 4 | |
Completed |
NCT03181230 -
Health, Fitness, and Quality of Life in Adolescent Girls With Turner Syndrome
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