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Self-Management for Youth and Families Living With SCD - SMYLS

Sickle Cell Disease Clinical Trial

Official title:
Self-Management for Youth and Families Living With Sickle Cell Disease - SMYLS

Clinical Trial Summary

The purpose of this proposal is to integrate family-centered self-management strategies with mobile health (mHealth) technology to improve reach, self-management behaviors, and child and caregiver physical and psychosocial symptoms and quality of life. Specifically, the investigators propose to conduct feasibility testing of SMYLS, which has been adapted based on user feedback in the first phase of this study. First the investigators will work with the Medical University of South Carolina (MUSC) Pediatric Sickle Cell Clinic to identify and recruit families with children with sickle cell disease (SCD) in the community, statewide. Next, the investigators will test the feasibility of the intervention with 30 dyads of children ages 8 - 17 with sickle cell disease and their parent or primary caregiver, (N=60)

Clinical Trial Description

n/a

Study Design

Related Conditions & MeSH terms

Clinical Trial Details
NCT number NCT03585543
Study type Interventional
Source Medical University of South Carolina
Contact
Status Completed
Phase N/A
Start date March 16, 2018
Completion date January 31, 2019
View Details
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