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Worldwide Sarcoidosis Research Study — WISE  

Sarcoidosis Clinical Trial

Official title:
Worldwide Sarcoidosis Research Study

Clinical Trial Summary

The aim of this study is to collect information about the clinical course and characteristics of sarcoidosis patients around the world through web-based surveys. Recruitment is directed at and driven by patients in the sarcoidosis community. This will allow the the investigators to study sarcoidosis patients across all demographic, geographic, and socioeconomic boundaries, not just patients seen at large research centers. The investigators believe this study can give investigators a broader and less biased view of sarcoidosis. The investigators would also like to collect genetic samples on this population to assess genetic variance in different phenotypes. The information for the study would be provided through a web based survey system that can be accessed by patients or physicians of patients from any computer with Internet access. This system would collect clinical information in sufficient detail so that the phenotype of individual patients can be evaluated. Upon agreeing to participate in further research studies through the website, subjects will also have the opportunity to provide a DNA sample.

Clinical Trial Description

n/a

Study Design

Related Conditions & MeSH terms

Clinical Trial Details
NCT number NCT01610843
Study type Observational
Source University of Iowa
Contact Alicia K Gerke, MD
Phone 319-356-1869
Email alicia-gerke@uiowa.edu
Status Recruiting
Phase
Start date December 2011
Completion date February 23, 2025
View Details
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