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Clinical Trial Summary

The Diagnostic Experience of Male Rett Syndrome collects information on the lived experiences of parents or caregivers to boys with Rett Syndrome. Key information examined includes the process of getting a male Rett syndrome diagnosis, your son's systems of care, and your priorities for his health needs. Enrolled participants will complete an online survey with questions about having a son with Rett Syndrome. The Diagnostic Experience of Male Rett Syndrome study is available to parents or caregivers to boys (alive or passed) with Rett Syndrome. Compensation is not provided.


Clinical Trial Description

n/a


Study Design


Related Conditions & MeSH terms


NCT number NCT06346106
Study type Observational
Source Children's Hospital Colorado
Contact Natalia Klamut
Phone ?(720) 277-9095?
Email malerettstudy@cuanschutz.edu
Status Recruiting
Phase
Start date May 24, 2023
Completion date April 30, 2024

See also
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