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The Struggle That Is Phenylketonuria : What Do The Patients and Caregivers Suffer From

Caregiver Burden Clinical Trial

Official title:
The Struggle That Is Phenylketonuria : What Do The Patients and Caregivers Suffer From

Clinical Trial Summary

Objective: To assess the stress levels and life hardships of phenylketonuria patients and their parents.

Clinical Trial Description

Study Design: Between January 2020 - June 2020, a total of 156 phenylketonuria patients and their parents who arrived for their regular examinations were included. Parents were asked to fill the parenting stress index, Zarit burden scale and the strengths and difficulties questionnaire and children over the age of eleven were asked to fill the Rosenberg self-esteem scale, the stait-trait anxiety inventory and strengths and difficulties questionnaire. ;

Study Design

Related Conditions & MeSH terms

Clinical Trial Details
NCT number NCT06280261
Study type Observational
Source Hacettepe University
Contact
Status Completed
Phase
Start date May 27, 2020
Completion date September 1, 2020
View Details
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