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Clinical Trial Summary

Solve Together is a platform designed to collect clinical data about post-infectious diseases, including ME/CFS and Long Covid. This data is made available to researchers and will be used to identify participants eligible for clinical studies. The platform also empowers patients to make reports for their doctors, connect medical records and/or a health-tracking wearable device, and identify their unique symptoms and health patterns.


Clinical Trial Description

Solve Together description coming soon. The combination of data and integration with wearable technologies and EHRs will : (1) improve our understanding of the natural history, epidemiology, pathogenesis, resilience/susceptibility factors, disease subsets, and treatment of ME/CFS and long-COVID using a standardized set of demographic and longitudinal data; (2) build an infrastructure and resource to support a range of clinical research participation opportunities for these patients; (3) increase opportunities for collaboration between patients, providers, researchers, and industry. Anyone 18 years of age and older is invited to sign up. After creating a profile and completing an informed consent via an online portal, participants fill out a series of surveys, including medical history, co-occurring conditions, symptoms, quality of life, and functional status. Participants receive email or text reminders to complete additional surveys to provide researchers with information about eligibility for clinical research. Solve Together includes a mobile tracking app co-created with patients that allow participants to monitor symptoms and triggers and set pacing notifications. Data are stored in a secure, encrypted database. Data are aggregated and anonymized before being made available on a secure platform for research. This project is supported by Solve ME/CFS Initiative. You can learn more and sign up starting September 12, 2023, at https://solvecfs.org/research/solve-together/ ;


Study Design


Related Conditions & MeSH terms


NCT number NCT04806620
Study type Observational [Patient Registry]
Source Solve ME/CFS Initiative
Contact Hsin-hao T Hsiao, PhD
Phone 704-364-0016
Email thsiao@solvecfs.org
Status Recruiting
Phase
Start date July 5, 2023
Completion date July 1, 2025