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Porphyria, Acute Intermittent clinical trials

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NCT ID: NCT03547297 Terminated - Clinical trials for Acute Hepatic Porphyria

INSIGHT-AHP: A Study to Characterize the Prevalence of Acute Hepatic Porphyria (AHP) in Patients With Clinical Presentation and History Consistent With AHP

Start date: May 29, 2018
Phase:
Study type: Observational

This study will use specific diagnostic tests on a group of patients who are experiencing symptoms typical of acute hepatic porphyria (AHP) to determine how many have the condition, and to potentially help improve the diagnostic process for patients in the future.

NCT ID: NCT02922413 Terminated - Clinical trials for Acute Intermittent Porphyria

Panhematin for Prevention of Acute Attacks of Porphyria

Start date: October 30, 2015
Phase: Phase 2
Study type: Interventional

The purpose of this study is to determine if Panhematin is safe and effective for prevention of acute attacks of porphyria. The study aims to provide high quality evidence for the use on hemin for prevention of acute attacks of porphyria. High quality studies have not been done previously for treating or preventing acute attacks with hemin. The lack of strong evidence for efficacy of hemin for treatment and prevention of attacks limits its availability for patients with acute porphyrias. Funding source: FDA Office of Orphan Product Development (FDA OOPD) FD-R-03720