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Clinical Care Consortium of Telomere-Associated Ailments (CCCTAA) Database

Dyskeratosis Congenita Clinical Trial

Official title:
Clinical Care Consortium of Telomere-Associated Ailments (CCCTAA) Database

Clinical Trial Summary

Study Description: This protocol will be utilized for the creation and management of a repository of coded clinical data on patients with Telomere Biology Disorders (TBDs) submitted by researchers from CCCTAA member institutions. Objective: The primary objective of this study is to develop a shared database (repository) of coded clinical research data, managed by NCI, to facilitate collaborative research across CCCTAA member institutions.

Clinical Trial Description

Study Description: This protocol will be utilized for the creation and management of a repository of coded clinical data on patients with Telomere Biology Disorders (TBDs) submitted by researchers from CCCTAA member institutions. Objective: The primary objective of this study is to develop a shared database (repository) of coded clinical research data, managed by NCI, to facilitate collaborative research across CCCTAA member institutions. ;

Study Design

Related Conditions & MeSH terms

Clinical Trial Details
NCT number NCT05436431
Study type Observational
Source National Institutes of Health Clinical Center (CC)
Contact Cecilia P Higgs
Phone (240) 276-7627
Email cecilia.higgs@nih.gov
Status Recruiting
Phase
Start date July 17, 2022
Completion date December 31, 2037
View Details
See also
  Status Clinical Trial Phase
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Completed NCT00455312 - Stem Cell Transplant (SCT) for Dyskeratosis Congenita or SAA Phase 2/Phase 3
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