Inherited Retinal Dystrophy Primarily Involving Sensory Retina Clinical Trial
Official title:
Establishment of the National Registry for Inherited Retinal Dystrophy in Iran
Purpose: To establish of the national Inherited Retinal Dystrophy Registry (IRDR) in Iran.
Methods: This study is a community-based participatory research that is approved by the
Ministry of Health and Medical Education of Iran in 2016. To provide the minimum data set
(MDS), several focus group meetings will be held with participation of the faculty members of
the Ophthalmic Research Center affiliated to Shahid Beheshti University of Medical Sciences
(SBMU). Final MDS will be presented to the software engineering team to develop a web-based
software. In the pilot phase, software will be set up in two referral centers including
Labbafinejad Medical Center (Tehran) and Alzahra Eye Hospital (Zahedan) to discover the
possible drawbacks. Final diagnosis will be made based on both clinical manifestations as
well as genetic findings.The steering committee meetings are planned to be held each year
with the presence of delegates of all centers.
n/a
| Status | Clinical Trial | Phase | |
|---|---|---|---|
| Terminated |
NCT03561922 -
Impact on Daily Life of Patients Using the Subretinal Implant RETINA IMPLANT Alpha AMS
|
N/A | |
| Recruiting |
NCT05626920 -
Disulfiram for Treatment of Retinal Degeneration
|
Phase 1/Phase 2 | |
| Completed |
NCT03613948 -
Study on the Effects of Mutations Under Inherited Retinal Disease in Korean
|