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MyVHL: Patient Natural History Study — MyVHL  

Von Hippel-Lindau Disease Clinical Trial

Official title:
MyVHL: Patient Natural History Study

Clinical Trial Summary

MyVHL is a multi-patient database which helps researchers identify patterns across VHL patients. MyVHL provides you -and researchers -with more complete information about VHL, like how your lifestyle, medications, and other factors impact the disease and quality of life. These insights help you better understand the condition and help researchers know where to focus their efforts. Due to its rarity, there is less understanding of VHL and the factors that may have an impact. The data individuals provide in MyVHL helps researchers identify and uncover factors that may increase risk, inhibit or slow tumor growth, or lead to an effective cure.

Clinical Trial Description

n/a

Study Design

Related Conditions & MeSH terms

Clinical Trial Details
NCT number NCT03749980
Study type Observational [Patient Registry]
Source VHL Alliance
Contact Joshua Mann, MPH
Phone 161727756674
Email josh.mann@vhl.org
Status Recruiting
Phase
Start date January 2012
Completion date December 2028
View Details
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