FSHD - Facioscapulohumeral Muscular Dystrophy Clinical Trial
Official title:
Disease Progression in Facioscapulohumeral Muscular Dystrophy - 1 Year MRI Follow-up
An investigation of disease progression in adult danish patients with facioscapulohumeral muscular dystrophy. The disease progression is followed for a year with two test-days, including functional muscle tests and a MRI scan of muscles in the back and legs.
A cohort of adult danish patients with facioscapulohumeral muscular dystrophy is invited to
perform a MRI scan to describe the relation between backpain and disease affection in back
muscles. After one year they are re-invited to perform another MRI scan to follow the
disease progression.
The MRI scan is done to measure the quantity and quality of the muscles in the back, thigh
and calf. Further, investigators investigate the muscle function by measuring of muscle
strength in legs and in the back together with three functional tests. A walking test
(6MWT), a stair test (14SST), and a chair test (5-TSTST). Self-assessment of back pain is
measured by a standardized questionnaire about backpain.
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Observational Model: Cohort, Time Perspective: Prospective
| Status | Clinical Trial | Phase | |
|---|---|---|---|
| Completed |
NCT02159963 -
High Intensity Training in Patients With Facioscapulohumeral Muscular Dystrophy
|
N/A |