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Clinical Trial Details — Status: Completed

Administrative data

NCT number NCT01818492
Other study ID # NI-0501-04
Secondary ID 2012-003632-23
Status Completed
Phase Phase 2/Phase 3
First received
Last updated
Start date July 2013
Est. completion date January 2019

Study information

Verified date April 2021
Source Swedish Orphan Biovitrum
Contact n/a
Is FDA regulated No
Health authority
Study type Interventional

Clinical Trial Summary

The purpose of this study is to assess the safety, tolerability and efficacy of a new drug aimed at controlling disease activity in patients diagnosed with primary haemophagocytic lymphohistiocytosis. The new drug can be administered as the first-line therapy, to patients not previously treated with the current standard of care, or can be given to patients who have either failed or were unable to tolerate the current standard of care. Administration will be on top of a glucocorticosteroid, which is usually part of the current recommended treatment.


Description:

The purpose of this study is to assess the safety, tolerability and efficacy of a new drug aimed at controlling disease activity in patients diagnosed with primary haemophagocytic lymphohistiocytosis. The new drug can be administered as the first-line therapy, to patients not previously treated with the current standard of care, or can be given to patients who have either failed or were unable to tolerate the current standard of care. Administration will be on top of a glucocorticosteroid, which is usually part of the current recommended treatment. All participants in the NI-0501-04 study (NCT01818492) were invited to participate in the long-term follow-up study NI-0501-05 (NCT02069899). For the primary completion date, mentioned here, we refer to the NI-0501-04 study, even though in accordance with the NI-0501-04 study objectives, namely the assessment of long-term efficacy and safety endpoints, the study analyses also included data collected in the long-term follow-up study NI-0501-05. Hence these data are reported together. Study NI-0501-05 accepts patients from NI-0501-04 and NI-0501-06. Data collection for the patients from NI-0501-04 is completed. The primary efficacy and safety analyses are based on the regulatory cut-off date of 20 July 2017. Refer to the publication in N Engl J Med 2020 May 7; 382 (19):1811-1822. Follow-on analyses have been conducted on all patients enrolled in the study, i.e. including the patients enrolled after the cut-off date of 20 July 2017. The results reported here refer to the totality of the 45 patients enrolled.


Recruitment information / eligibility

Status Completed
Enrollment 45
Est. completion date January 2019
Est. primary completion date January 2019
Accepts healthy volunteers No
Gender All
Age group N/A to 18 Years
Eligibility Inclusion Criteria: - Gender: male and female - Age: up to and including 18 years at diagnosis of Haemophagocytic Lymphohistiocytosis - Primary HLH patients - Patient (if = 18 years old), or patient's legal representative(s) must have signed informed consent Exclusion Criteria: - Diagnosis of secondary Haemophagocytic Lymphohistiocytosis consequent to a proven rheumatic or neoplastic disease. - Body weight < 3 kg. - Patients treated with biologics within a specific timeframe - Active Mycobacteria, Histoplasma Capsulatum, Shigella, Salmonella, Campylobacter and Leishmania infections. - Presence of malignancy. - Concomitant disease or malformation severely affecting the cardiovascular, pulmonary, liver or renal function

Study Design


Related Conditions & MeSH terms

  • Lymphohistiocytosis, Hemophagocytic
  • Primary Haemophagocytic Lymphohistiocytosis

Intervention

Biological:
NI-0501


Locations

Country Name City State
Germany University Children's Hospital Münster
Italy Azienda Ospedaliero Universitaria Meyer Florence
Italy Istituto Giannina Gaslini Genoa
Italy Azienda Ospedaliera San Gerardo Monza
Italy Azienda Ospedaliera Padova - Clinica di Oncoematologia Pediatrica Padua
Italy Ospedale Pediatrico Bambino Gesu' Roma
Italy Ospedale Donna Bambino - U.O.C. Oncoematologia Pediatrica Verona
Spain Hospital Sant Joan de Déu Barcelona
Spain Hospital Universitario Vall d'Hebron Barcelona
Spain Hospital Universitario Niño Jesús Madrid
Sweden Karolinska University Hospital Stockholm
United Kingdom Great Ormond Street Hospital - Department of Haematology London
United States Children's Healthcare of Atlanta Atlanta Georgia
United States Children's Hospital Colorado Aurora Colorado
United States Dana-Farber Cancer Institute (DFCI) Boston Massachusetts
United States University of North Carolina at Chapel Hill Chapel Hill North Carolina
United States Cincinnati Children's Hospital - Division of Immunobiology - Department of Pediatrics Cincinnati Ohio
United States Texas Children's Cancer Center Houston Texas
United States Primary Children's Hospital Salt Lake City Utah
United States Alfred I. duPont Hospital for Children - Nemours Center for Cancer and Blood Disorders - Division of Pediatric Hematology Oncology Wilmington Delaware

Sponsors (2)

Lead Sponsor Collaborator
Swedish Orphan Biovitrum Seventh Framework Programme

Countries where clinical trial is conducted

United States,  Germany,  Italy,  Spain,  Sweden,  United Kingdom, 

Outcome

Type Measure Description Time frame Safety issue
Primary Overall Response Rate (ORR) Second Line Achievement of either Complete (CR) or Partial Response (PR), or HLH Improvement (HI) at End of Treatment of Study NI 0501-04 (EOT 04), based on pre-specified algorithm.
CR: no fever, normal spleen size, no cytopenia (ANC = 1.0x109/L and platelet count = 100x109/L), no hyperferritinemia (serum ferritin <2000 µg), no coagulopathy (normal D-dimer and/or fibrinogen >150 mg/dL), no neurological and CSF abnormalities attributed to HLH, no sustained worsening of sCD25.
PR: at least 3 HLH clinical and laboratory criteria (including CNS abnormalities) met the CR criteria, no progression of other aspects of HLH disease pathology.
HI: improvement (>50% change from baseline) of at least 3 HLH clinical and laboratory criteria (including CNS involvement).
End of Treatment (3 days after the last infusion of emapalumab in study NI-0501-04, occurring between 4 and 8 weeks)
Primary Overall Response Rate (ORR) All Treated Achievement of either Complete (CR) or Partial Response (PR), or HLH Improvement (HI) at End of Treatment of Study NI 0501-04 (EOT 04), based on pre-specified algorithm.
CR: no fever, normal spleen size, no cytopenia (ANC = 1.0x109/L and platelet count = 100x109/L), no hyperferritinemia (serum ferritin <2000 µg), no coagulopathy (normal D-dimer and/or fibrinogen >150 mg/dL), no neurological and CSF abnormalities attributed to HLH, no sustained worsening of sCD25.
PR: at least 3 HLH clinical and laboratory criteria (including CNS abnormalities) met the CR criteria, no progression of other aspects of HLH disease pathology.
HI: improvement (>50% change from baseline) of at least 3 HLH clinical and laboratory criteria (including CNS involvement).
End of Treatment (3 days after the last infusion of emapalumab in study NI-0501-04, occurring between 4 and 8 weeks)
Primary Overall Response Rate (ORR) Follow-on Analysis Set: Achievement of either Complete (CR) or Partial Response (PR), or HLH Improvement (HI) at End of Treatment of Study NI 0501-04 (EOT 04), based on pre-specified algorithm.
CR: no fever, normal spleen size, no cytopenia (ANC = 1.0x109/L and platelet count = 100x109/L), no hyperferritinemia (serum ferritin <2000 µg), no coagulopathy (normal D-dimer and/or fibrinogen >150 mg/dL), no neurological and CSF abnormalities attributed to HLH, no sustained worsening of sCD25.
PR: at least 3 HLH clinical and laboratory criteria (including CNS abnormalities) met the CR criteria, no progression of other aspects of HLH disease pathology.
HI: improvement (>50% change from baseline) of at least 3 HLH clinical and laboratory criteria (including CNS involvement).
End of Treatment (3 days after the last infusion of emapalumab in study NI-0501-04, occurring between 4 and 8 weeks)
Primary Overall Response Rate (ORR) at End of Treatment in Study NI-0501-04 (EOT 04) Follow-on Analysis Set: All Treated Achievement of either Complete (CR) or Partial Response (PR), or HLH Improvement (HI) at End of Treatment of Study NI 0501-04 (EOT 04), based on pre-specified algorithm.
CR: no fever, normal spleen size, no cytopenia (ANC = 1.0x109/L and platelet count = 100x109/L), no hyperferritinemia (serum ferritin <2000 µg), no coagulopathy (normal D-dimer and/or fibrinogen >150 mg/dL), no neurological and CSF abnormalities attributed to HLH, no sustained worsening of sCD25.
PR: at least 3 HLH clinical and laboratory criteria (including CNS abnormalities) met the CR criteria, no progression of other aspects of HLH disease pathology.
HI: improvement (>50% change from baseline) of at least 3 HLH clinical and laboratory criteria (including CNS involvement).
End of Treatment (3 days after the last infusion of emapalumab in study NI-0501-04, occurring between 4 and 8 weeks)
Secondary Time to Response Time from the date of the first dose of emapalumab to first achievement of response (at least HLH improvement) Assessed up to End of Treatment (3 days after the last infusion of emapalumab in study NI-0501-04, occurring between 4 and 8 weeks)
Secondary Durability of First Response Maintenance of response achieved any time during the study Assessed up to End of Treatment (3 days after the last infusion of emapalumab in study NI-0501-04, occurring between 4 and 8 weeks)
Secondary Overall Survival Number of patients being alive at end of treatment or at week 8, pending on which comes first. Time from the date of first dose to last dose, or 8 weeks after first dose.
Secondary Number of Patients Able to Reduce Glucocorticoids Number of patients able to reduce glucocorticoids by 50% or more and between =30%-<50%, of baseline dose at EOT 04. End of Treatment (3 days after the last infusion of emapalumab in study NI-0501-04, occurring between 4 and 8 weeks.
Secondary Cumulative Duration of Response Percent of treatment time in response from the first achievement of an Overall Response until HSCT conditioning, or End of Treatment 04/05 (if the patient did not have HSCT performed) Where applicable, data were collected in both NI-0501-04 and long-term follow-up study NI-0501-05. up to start of HSCT conditioning, whenever HSCT conditioning is scheduled (at least 4 weeks after treatment start), or End of Treatment 04/05 (if the patient did not have HSCT performed)
Secondary Survival Pre-HSCT Time from the date of first dose to the date of death, expressed in Kaplan-Meier survival probability estimates. Patients who receive HSCT will be censored at that date; patients who did not receive HSCT will be censored at last date of contact.
Where applicable, data were collected in both NI-0501-04 and long-term follow-up study NI-0501-05.
Assessed up to HSCT, whenever HSCT occurred (up to approximately 6 months after treatment initiation)
Secondary Survival Post-HSCT Time from the date of first dose to the date of death, expressed in Kaplan-Meier survival probability estimates. Patients without an event will be censored at last assessment date in either the NI-0501-04 or NI-0501-05 study. Patients who do not proceed to HSCT will be excluded from this analysis. Assessed up to Last Observation (up to 1 year after transplant, or up to approximately 18 months after treatment initiation)