Neuromuscular Diseases Clinical Trial
Official title:
Muscular Dystrophy Translational Research Program Neuromuscular Research Biobank
The purpose of this research repository is to collect, store, and share with other researchers any tissues that subjects with all types of neuromuscular disease are willing to donate. These samples will be stored at Virginia Commonwealth University (VCU) and will be used for future research with this population.
The study involves collection of medical information about research participants and their families. No identifying information about family members will be collected. Research participants will be asked for any general knowledge they have related to possible neurological disorders. Research participants are also given the opportunity to provide blood, skin cells, urine, saliva, fecal matter, muscle tissue, cells, DNA and/or RNA samples. Before any study procedures take place, the informed consent form will be provided and reviewed with potential research participants in detail. Potential research participants will have an opportunity to ask additional questions before starting any study procedures. ;
| Status | Clinical Trial | Phase | |
|---|---|---|---|
| Active, not recruiting |
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||
| Completed |
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N/A | |
| Recruiting |
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Outcomes of RV Dysfunction in Acute Exacerbation of Chronic Respiratory Diseases
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| Active, not recruiting |
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|
N/A | |
| Completed |
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Home Use of Mechanical Insufflation/Exsufflation Devices in Neuromuscular Diseases
|
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| Recruiting |
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Perceptions of the Clinical and Psychosocial Impact of Covid-19 in Patients With Neuromuscular and Neurological Disorders
|
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| Completed |
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Effect of the Use of a 3D Scanner Application on a Smartphone to Mold Garchois Orthotic Device in Neuromuscular Diseases Patients With Scoliosis
|
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| Enrolling by invitation |
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Reliability and Validity of the Turkish Version of the PedsQL 3.0 Neuromuscular Module for 2-to 4- Year-old
|
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| Completed |
NCT05353738 -
Efficacy of Vaccination Against COVID-19 in Patients Presenting a Neuromuscular Disease With Severe Amyotrophy
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| Recruiting |
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Detection of Neuromuscular Complications in Critically Ill Patients
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| Completed |
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Electronic Medical Records and Genomics (eMERGE) Phase III
|
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| Enrolling by invitation |
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Changes of Motor Function Tests in Congenital Myopathy Subjects Treated With Oral Salbutamol as Compared to no Treatment
|
N/A | |
| Completed |
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N/A | |
| Recruiting |
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Multisystem and Autonomic Complications of NMD on Long-term NIV
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| Recruiting |
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| Completed |
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Epidemiology and Clinical Presentation of H1N1 Infection in Children in Geneva
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N/A | |
| Terminated |
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Telemedicine for Improving Outcome in Inner City Patient Population With Hypercapneic Respiratory Failure
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N/A |