Solution Focused Coaching Strategy Within a Paediatric Multidisciplinary Neuromuscular Clinic

Neuromuscular Diseases Clinical Trial

Official title:

Implementation and Evaluation of Solution Focused Coaching Strategy Within a Paediatric Multidisciplinary Neuromuscular Clinic

Clinical Trial Details — Status: Active, not recruiting

Administrative data

• NCT number: NCT02997514
• Other study ID #: 16-651
• Status: Active, not recruiting
• Phase: N/A
• Start date: January 2017
• Est. completion date: November 2019

Study information

• Verified date: July 2018
• Source: Holland Bloorview Kids Rehabilitation Hospital
• Contact: n/a
• Is FDA regulated: No
• Study type: Interventional

Clinical Trial Summary

The purpose of this study is to implement Solution Focused Coaching in pediatric rehabilitation (SFC-peds) within the multidisciplinary neuromuscular clinic at Holland Bloorview Kids Rehabilitation Hospital and evaluate its effect on children's ability to set and attain personally meaningful goals. A secondary goal is to determine the impact of SFC-peds on self-determination in children with neuromuscular conditions. This study aims to compare two methods of SCF-peds delivery, a single coaching session vs. intensive coaching (5 sessions) on goal attainment. This study will also help researchers and clinicians understand the types of goals that are set by children with neuromuscular conditions. Lastly, this study is going to explore with the participants their perception of the feasibility of using this methodology within a clinical context.

Description:

Nationally, standards of care have been published for paediatric neuromuscular (NM) conditions to optimize care, improve quality of life and increase life span. Children with NM conditions are followed in regional multidisciplinary clinics in Ontario and across Canada. At each visit they can be seen by 8 health care providers each focusing on and making recommendations for the different aspects of their care. Currently, there are no evidenced based interventions for children with NM conditions evaluating the ability of children to set and attain their care goals and/or other personally meaningful goals.

Self-determination is defined as the ability to "use skills, knowledge and beliefs that enable a person to engage in goal directed, self-regulated, autonomous behavior." The development of self-determination is a process that begins in childhood. Solution Focused Coaching (SFC) is a strengths- based, client-centered approach to service delivery that supports clients to build on their existing capacity to move closer to meaningful goals. This study will evaluate the impact of SFC on goal setting, achievement and self determination in children with NM conditions.

Recruitment information / eligibility

• Status: Active, not recruiting
• Enrollment: 40
• Est. completion date: November 2019
• Est. primary completion date: November 2019
• Accepts healthy volunteers: No
• Gender: All
• Age group: 10 Years to 18 Years

Eligibility

Inclusion Criteria:

• child has a primary NM diagnosis

• child ages 10-18 years

• child able to converse orally in English

• child has a willingness to engage in the coaching intervention

• child is aware that they have a neuromuscular condition

• child is followed clinically in the Neuromuscular Clinic at Holland Bloorview Kids Rehabilitation Hospital at 4-6 month intervals

• child has internet access at home and a device to connect to the internet with a camera

• child is able to demonstrate capacity to consent

• parent is able to read and write in English

Exclusion Criteria:

-child has a moderate to severe intellectual disability

Related Conditions & MeSH terms

• Neuromuscular Diseases

Intervention

Behavioral:
• Solution Focused Coaching
SFC is an approach that uses strategic questioning to help the client envision what they would like to be different and how they will take action towards achieving their goals.
• Intensive Solution Focused Coaching
Intensive SFC is an approach that uses strategic questioning to help the client envision what they would like to be different and how they will take action towards achieving their goals.

Locations

Country	Name	City	State
n/a

Sponsors (2)

Lead Sponsor	Collaborator
Holland Bloorview Kids Rehabilitation Hospital	AHSC AFP Innovation Fund- Ontario Government

References & Publications (2)

Baldwin P, King G, Evans J, McDougall S, Tucker MA, Servais M. Solution-focused coaching in pediatric rehabilitation: an integrated model for practice. Phys Occup Ther Pediatr. 2013 Nov;33(4):467-83. doi: 10.3109/01942638.2013.784718. Epub 2013 Apr 24. — View Citation

Field, S., Martin, J., Miller, R., Ward, M., & Wehmeyer, M. (1998). A practical guide for teaching self-determination. Reston, VA: Council for Exceptional Children. In Field, S., Martin, J., Miller, R., Ward, M., & Wehmeyer, M. (1998). Self-determination for persons with disabilities: A position statement of me division on career development and transition. Career Development for Exceptional Individuals, 21(2), 113-128.

Outcome

Type	Measure	Description	Time frame	Safety issue
Primary	Change on Canadian Occupational Performance Measure (COPM)		Week 0 and Week 14
Primary	Change on Goal Attainment Scaling (GAS)		Week 0 and Week 14
Secondary	American Research Council's Self Determination Scale (ARC SDS)		Week 0 and Week 14
Secondary	Solution-Focused Fidelity Instrument (SFFI)	Done after each coaching session	Weeks: 2, 3, 4, 6, 10 and 14
Secondary	Thematic Analysis of Interview Questions Exploring Solution Focused Coaching Process		Week 14