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Clinical Trial Details — Status: Completed

Administrative data

NCT number NCT06335368
Other study ID # 201512178RINC
Secondary ID
Status Completed
Phase
First received
Last updated
Start date March 9, 2016
Est. completion date October 26, 2020

Study information

Verified date July 2022
Source National Taiwan University Hospital
Contact n/a
Is FDA regulated No
Health authority
Study type Observational

Clinical Trial Summary

Children with Rett syndrome are in a period of rapid growth, and proper and appropriate nutritional support is very important. Past foreign research papers it has been pointed out that most of these patients have feeding difficulties, dysphagia, and digestive tract abnormalities, are often constipated, and may suffer from osteoporosis and other problems. Lack of proper nutritional support will seriously affect their growth, development and health. in view of There is a lack of relevant research in China, so the investigators would like to use this research to explore the nutritional, growth and postural status of Rett's disease patients, as the reference direction and goal of dietary adjustment and nutritional support for patients, and establish dietary and nutritional strategies for sick children in Taiwan.


Recruitment information / eligibility

Status Completed
Enrollment 70
Est. completion date October 26, 2020
Est. primary completion date May 23, 2016
Accepts healthy volunteers
Gender All
Age group 1 Year to 18 Years
Eligibility Inclusion Criteria: - Rett syndrome patient. Exclusion Criteria: - Not Rett syndrome patient.

Study Design


Intervention

Other:
Nutrition and Growth Status
Nutrition and Growth Status

Locations

Country Name City State
n/a

Sponsors (1)

Lead Sponsor Collaborator
National Taiwan University Hospital

Outcome

Type Measure Description Time frame Safety issue
Primary gender, age , disease history checklist 1 year
Primary Change in Body height The growth status of the case will be assessed 1 year
Primary Change in Body weight The growth status of the case will be assessed 1 year
Primary Change in knee height The growth status of the case will be assessed 1 year
Primary Change in arms height The growth status of the case will be assessed and growth curve 1 year
Primary Change in waist The growth status of the case will be assessed 1 year
Primary Change in hip circumferences The growth status of the case will be assessed 1 year
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