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Natural History clinical trials

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NCT ID: NCT06366815 Recruiting - Clinical trials for Duchenne Muscular Dystrophy

phenotypeS in Non Ambulant Duchenne Muscular Dystrophy

GUP21003
Start date: August 30, 2022
Phase:
Study type: Observational [Patient Registry]

The aims of the study are to prospectively collect information on several aspects of function in non-ambulant DMD patients by using a structured battery of tests including motor, respiratory and cardiac function

NCT ID: NCT05077748 Recruiting - Clinical trials for Obstructive Sleep Apnea

An 18-year Follow-up Study on OSA in a Population-based Cohort

Start date: October 20, 2021
Phase:
Study type: Observational

Our research team has established a polysomnography (PSG) quantified population-based paediatric sleep cohort in 2003 for a childhood OSA prevalence study. Subjects were recruited from 13 randomly selected primary schools. All subjects from this original cohort will be invited to join this 18-year follow-up study to repeat the following data collection: questionnaires, anthropometric measurement, sleep study, 24-hour ambulatory blood pressure (ABP) measurement, echocardiography and neurocognitive assessment.

NCT ID: NCT04304118 Recruiting - Natural History Clinical Trials

Rajaie Cardiomyopathy and Myocarditis Registry

Start date: November 11, 2019
Phase:
Study type: Observational [Patient Registry]

The prevalence of patients with cardiomyopathies who referred to Rajaei Cardiovascular medical and research center is remarkable, and also the mission of this center is to achieve center of excellence in the field of cardiomyopathy. Rajaie Cardiomyopathy and myocarditis Registry study is an observational registry of consecutive patients with four cardiomyopathy subtypes: hypertrophic cardiomyopathy (HCM), dilated cardiomyopathy (DCM), arrhythmogenic right ventricular cardiomyopathy (ARVC), and restrictive cardiomyopathy (RCM) as well as myocarditis designed to determine clinical characteristics, natural history, current therapeutic approaches, response to treatment and long-term outcomes of patients with cardiomyopathy and myocarditis and to address limitations in extant evidence to improve prognostication in cardiomyopathies and myocarditis. Prediction of mortality and response to different treatments in these patients using artificial intelligence is another aim of this registry

NCT ID: NCT03153878 Not yet recruiting - Clinical trials for Ischemic Heart Disease

The Prospective Cohort Study on the Benefit-risk of Antithrombotic or Anticoagulant Therapy in Patients With Unruptured Intracranial Aneurysms Associated With Ischemic Heart Disease or Ischemic Cerebrovascular Disease

Start date: June 1, 2017
Phase: N/A
Study type: Observational [Patient Registry]

This is a registry study of the natural course of unruptured intracranial aneurysms (UIA). In addition, the investigators will analyze the benefit-risk of antithrombotic or anticoagulant therapy in patients with unruptured intracranial aneurysms associated with ischemic heart disease or ischemic cerebrovascular disease. The investigators aim to use research data to create a China national database of UIA

NCT ID: NCT03117803 Recruiting - Clinical trials for Aneurysm, Intracranial

The Natural Course of Unruptured Intracranial Aneurysms in a Chinese Cohort

Start date: May 1, 2017
Phase: N/A
Study type: Observational [Patient Registry]

This is a registry study of the natural course of unruptured intracranial aneurysms (UIA). In addition, the investigators will analyze the risk factors for the rupture of the UIA and their joint effect. The investigators aim to use research data to create a China national database of UIA.