Caregiver Burden Clinical Trial
Official title:
The Struggle That Is Phenylketonuria : What Do The Patients and Caregivers Suffer From
Objective: To assess the stress levels and life hardships of phenylketonuria patients and their parents.
Study Design: Between January 2020 - June 2020, a total of 156 phenylketonuria patients and their parents who arrived for their regular examinations were included. Parents were asked to fill the parenting stress index, Zarit burden scale and the strengths and difficulties questionnaire and children over the age of eleven were asked to fill the Rosenberg self-esteem scale, the stait-trait anxiety inventory and strengths and difficulties questionnaire. ;
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