Primary Hyperoxaluria Clinical Trial
Official title:
Assessment of Health-related Quality of Life in Rare Kidney Stone Formers in the Rare Kidney Stone Consortium
Assessment of Health-related Quality of Life in Rare Kidney Stone Formers in the Rare Kidney Stone Consortium
The purpose of this study is to learn about Health-related Quality Of Life (HRQoL) in patients enrolled in the Rare Kidney Stone Consortium (RKSC) registries. Quality of life studies look at different aspects of both physical and mental components of people's lives. HRQoL data for people affected by kidney stones are not currently available for people followed over time. ;
Status | Clinical Trial | Phase | |
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Withdrawn |
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N/A | |
Recruiting |
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Baby Detect : Genomic Newborn Screening
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Completed |
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Primary Hyperoxaluria Mutation Genotyping/Phenotyping
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Completed |
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Phase 2/Phase 3 | |
Recruiting |
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National Registry of Rare Kidney Diseases
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||
Completed |
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Evaluation of the Efficacy of Stiripentol (Diacomit) as Monotherapy for the Treatment of Primary Hyperoxaluria
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Phase 2 | |
Recruiting |
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Rare Kidney Stone Consortium Biobank
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||
Completed |
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Study to Evaluate the Efficacy and Safety of Oxabact (OC5) in Primary Hyperoxaluria Patients Who Are on Dialysis
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Phase 2 | |
Recruiting |
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N/A | |
Recruiting |
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Rare Kidney Stone Consortium Patient Registry
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Completed |
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Study of ALLN-177 in Patients Aged 12 Years or Older With Enteric or Primary Hyperoxaluria and Hyperoxalemia
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Phase 2 | |
Completed |
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A Study to Evaluate the Efficacy and Safety of Oxabact in Patients With Primary Hyperoxaluria
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Phase 3 | |
Recruiting |
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Active, not recruiting |
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A Study to Evaluate Lumasiran in Patients With Advanced Primary Hyperoxaluria Type 1
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Phase 3 | |
Recruiting |
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Nedosiran in Pediatric Patients From Birth to 11 Years of Age With PH and Relatively Intact Renal Function
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Phase 2 | |
Completed |
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|
Phase 1 | |
Completed |
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Study to Evaluate the Efficacy and Safety of Oxabact (OC5) in Patients With Primary Hyperoxaluria
|
Phase 1/Phase 2 | |
Completed |
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Phase 2/3 Oxabact Study
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Phase 2/Phase 3 | |
Completed |
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Primary Hyperoxaluria Mutation Genotyping
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Phase 1 | |
Completed |
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An Extension Study of an Investigational Drug, Lumasiran (ALN-GO1), in Participants With Primary Hyperoxaluria Type 1
|
Phase 2 |