Clinical Trials Logo
  1. Home
  2. Death
  3. NCT00724646

Perspectives on End-of-Life Care for Medically-Fragile Children and Young Adults

Death Clinical Trial

Official title:
Direct Care Staff and Parents'/Legal Guardians' Perspectives on End-of-Life Care in a Long-Term Care Facility for Medically Fragile and Intellectually Disabled Pediatric and Young Adult Residents

Clinical Trial Summary

Hattie Larlham is a specialized long-term care facility for pediatric and young adult residents who are medically fragile and intellectually disabled, whose daily care is provided by direct care staff, Habilitation Assistants (HA), in conjunction with nurses and other direct care providers. The purpose of this study is to assess the perspectives of HA and parents/legal guardians on end-of-life care in a long-term care facility for pediatric and young adult residents who are medically fragile and intellectually disabled.

Clinical Trial Description

n/a

Study Design

Observational Model: Cohort, Time Perspective: Retrospective

Related Conditions & MeSH terms

Clinical Trial Details
NCT number NCT00724646
Study type Observational
Source Akron Children's Hospital
Contact
Status Completed
Phase N/A
Start date February 2009
Completion date June 2009
View Details
See also
  Status Clinical Trial Phase
Recruiting NCT03646955 - Partial Breast Versus no Irradiation for Women With Early Breast Cancer N/A
Recruiting NCT02552706 - The Efficacy and Mechanisms of Oral Probiotics in Preventing Necrotizing Enterocolitis N/A
Completed NCT01569178 - BAMI. The Effect of Intracoronary Reinfusion of Bone Marrow-derived Mononuclear Cells(BM-MNC) on All Cause Mortality in Acute Myocardial Infarction Phase 3
Recruiting NCT01193751 - Apgar-Score in Asphyxiated Infants Under Resuscitation N/A
Active, not recruiting NCT01597453 - NOR-SYS: The Norwegian Stroke in the Young Study N/A
Completed NCT00399503 - Assessment of Noninvasive Methods to Identify Patients at Risk of Serious Arrhythmias After a Heart Attack N/A
Completed NCT05128799 - Effect of the 3 Wishes Program on Bereaved Families' End-of-Life Care Perceptions
Completed NCT00340015 - A Prospective Study of Diet and Cancer in Members of the American Association of Retired Persons
Active, not recruiting NCT01618123 - Association of Endothelial Function and Clinical Outcomes in Subjects Admitted to Chest Pain Unit
Completed NCT01008241 - South Florida Residents Knowledge and Opinions on End-of-Life Issues
Completed NCT00225394 - Long Term Use of Valganciclovir for Prophylaxis of CMV Disease in Kidney and Pancreas Transplant Patients Phase 4
Terminated NCT05518474 - Self-proning and Repositioning in COVID-19 Outpatients at Risk of Complicated Illness N/A
Completed NCT02533128 - Biomarkers, Blood Pressure, BIS: Risk Stratification/Management of Patients at Cardiac Risk in Major Noncardiac Surgery N/A
Recruiting NCT05199025 - Biomarkers in Perioperative Management
Not yet recruiting NCT06371677 - Polish Nationwide Register of Hospitalized Patients in Cardiac Intensive Care Units
Completed NCT04709120 - Analysis of Health Status of Сomorbid Adult COVID-19 Patients Hospitalised in Second Wave of SARS-CoV-2 Infection
Enrolling by invitation NCT05374291 - The RENAL LIFECYCLE Trial: A RCT to Assess the Effect of Dapagliflozin on Renal and Cardiovascular Outcomes in Patients With Severe CKD Phase 3
Recruiting NCT01792739 - Lactobacillus Preparation on the Incidence of Diarrhea Phase 4
Completed NCT00753428 - Community-based Evaluation of a Pilot PMTCT Project in Kafue District
Completed NCT00495690 - Impact of Daily Zinc Supplementation to Infants Born With Low Birth Weight on Death and Severe Disease Phase 3