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The CHAPTER II Study - Congenital Heart Adolescents Participating in Transition Evaluation Research

Congenital Heart Disease Clinical Trial

Official title:
The CHAPTER II Study - Congenital Heart Adolescents Participating in Transition Evaluation Research

Clinical Trial Summary

Transition is the planned movement of teens with chronic conditions from child-centered to adult-oriented healthcare. National bodies have published detailed guidelines about the importance of helping teens move to adult healthcare. However, there is no research regarding how to best organize and deliver Congenital Heart Disease (CHD) transition programs. Data is urgently needed. Therefore, the aim of this program is to develop research evidence that will better prepare health care providers to improve how they can help adolescents with transition.

This project will determine whether a nurse-led transition intervention program is better at preparing teens with CHD to independently manage their medical care, compared to the care that is currently provided. The most important finding of this study will be whether or not these teens subsequently attend the adult cardiology clinic that specializes in CHD problems, and the timing of when they attend.

Hypothesis: A transition intervention in combination with usual care, improved time to first Adult Congenital Heart Disease (ACHD) clinic attendance compared to usual care alone.

Clinical Trial Description

n/a

Study Design

Related Conditions & MeSH terms

Clinical Trial Details
NCT number NCT01723332
Study type Interventional
Source University of Alberta
Contact
Status Completed
Phase N/A
Start date November 2012
Completion date December 1, 2016
View Details
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