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Churg-Strauss Syndrome (CSS) clinical trials

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NCT ID: NCT02507024 Completed - Vasculitis Clinical Trials

The ANCA Vasculitis Questionnaire (AAV-PRO©)

AAV-PRO
Start date: July 2015
Phase: N/A
Study type: Observational [Patient Registry]

The aim of this project is to develop a disease specific patient reported outcome measure (PROM) for patients with AAV (the AAV-PRO). Investigators are developing and validating a questionnaire to assess quality of life in patients with ANCA-associated vasculitis (AAV). Patients with AAV have inflammation in the small blood vessels leading to involvement of a range of organs and can suffer from ongoing disease activity or treatment side effects. Quality of life can be measured by patient reported outcome measures (PROMs).