Clinical Trial Details
— Status: Completed
Administrative data
| NCT number |
NCT05213663 |
| Other study ID # |
KSUFTR |
| Secondary ID |
|
| Status |
Completed |
| Phase |
|
| First received |
|
| Last updated |
|
| Start date |
January 1, 2022 |
| Est. completion date |
February 28, 2022 |
Study information
| Verified date |
September 2022 |
| Source |
Kahramanmaras Sutcu Imam University |
| Contact |
n/a |
| Is FDA regulated |
No |
| Health authority |
|
| Study type |
Observational
|
Clinical Trial Summary
Parents of Cerebral Palsy (CP) children participate in treatments, education services and
general medical check-ups; They have many responsibilities such as the use of drugs, devices,
educational materials. Therefore, involving parents of CP children in the rehabilitation
process provides a stronger rehabilitation service for their children. In the studies, it was
stated that the active participation of the parents in the physiotherapy and rehabilitation
process increases the success rate of the treatment and the participation of the parents
plays a key role for the success of the physiotherapy and rehabilitation.
Description:
Cerebral Palsy (CP) children have a different clinical picture that includes many diseases.
Abnormal muscle tone, insufficiency of postural control, weakness of muscle strength,
abnormal behavior patterns and sensory problems are common symptoms, especially motor
impairment can be in these children. These symptoms cause orthopedic problems, deformity and
developmental delay over time. Motor disorders may be accompanied by various problems such as
cognitive disorders, sensory, speech, cognitive, communication and behavioral problems,
epilepsy and secondary musculoskeletal system problems. Functional skills such as independent
sitting, standing, walking, balance, coordination, and fine motor skills are affected in
these children due to different damage of neuronal system. This negatively affects the
independence of activity in the child's daily life. CP children's treatment; It is carried
out by a multidisciplinary team of specialists, such as specialist physicians,
physiotherapists, psychologists, social counselors, child neurologists, orthopedists,
vision-hearing specialists, pediatricians, occupational therapists, special educators,
orthotics technicians, and with the participation of parents. The most important element of
the rehabilitation team is the parents. In the postnatal period, parents are the primary
responsible persons for the care of the child. This responsibility increases even more in the
child with CP. The motor activity loss and movement disorder that develops in a child
increase the functional dependency of the child in his daily life and cause him to need more
support. All family members are somehow involved in the health services provided to these
children. Parents are constantly involved in the life of the CP children and become aware of
their child's abilities and needs. Parents of children participate in treatments, education
services and general medical check-ups; They have many responsibilities such as the use of
drugs, devices, educational materials. Therefore, involving parents of children in the
rehabilitation process provides a stronger rehabilitation service for their children. In the
studies, it was stated that the active participation of the parents in the physiotherapy and
rehabilitation process increases the success rate of the treatment and the participation of
the parents plays a key role for the success of the physiotherapy and rehabilitation.
Parental support contributes to health and well-being and influences the success of long-term
rehabilitation. With the increasing importance of family-centered practices in recent years,
parents have started to take an active part in rehabilitation studies by continuing the
practices in the clinic at home and in the community. It is an increasingly important view
that parents play an important role in the lives of CP children. The acceptance of
family-oriented care and the emergence of new theories on motor development have affected the
treatment approach to these children, and the practices have become more family and
function-centered rather than child-centered. The aim of this study is to investigate the
awareness of parents of CP children about the disease, sports and physiotherapy and
rehabilitation.
