Investıgatıon Of The Awareness Of The Parents Of The Children With Cerebral Palsy — cp  

Cerebral Palsy Clinical Trial

Official title: Investıgatıon Of The Awareness Of The Parents Of The Children With Cerebral Palsy About The Disease, Physiotherapy And Rehabilitation

Status Completed

Clinical Trial Summary

Cerebral palsy (CP) is a permanent loss of motor activity and movement disorder that develops due to non-progressive damage before, during and after birth in the brain that has completed its development, but whose effect changes depending on age and causes movement limitation. Parents of children with CP participate in treatments, education services and general medical check-ups; They have many responsibilities such as the use of drugs, devices, educational materials. Therefore, involving parents of children with CP in the rehabilitation process provides a stronger rehabilitation service for their children. In the studies, it was stated that the active participation of the parents in the physiotherapy and rehabilitation process increases the success rate of the treatment and the participation of the parents plays a key role for the success of the physiotherapy and rehabilitation.

Clinical Trial Description

Cerebral palsy (CP) is not a single disease, but a clinical picture that includes many diseases. Abnormal muscle tone, insufficiency of postural control, weakness of muscle strength, abnormal behavior patterns and sensory problems are common symptoms, especially motor impairment. These symptoms cause orthopedic problems, deformity and developmental delay over time.Motor disorders may be accompanied by various problems such as cognitive disorders, sensory, speech, cognitive, communication and behavioral problems, epilepsy and secondary musculoskeletal system problems. Functional skills such as independent sitting, standing, walking, balance, coordination, and fine motor skills are affected in children with CP due to brain damage. This negatively affects the independence of activity in the child's daily life. SP treatment; It is carried out by a multidisciplinary team of specialists, such as specialist physicians, physiotherapists, psychologists, social counselors, child neurologists, orthopedists, vision-hearing specialists, pediatricians, occupational therapists, special educators, orthotics technicians, and with the participation of parents. The most important element of the rehabilitation team is the parents. In the postnatal period, parents are the primary responsible persons for the care of the child. This responsibility increases even more in the child with CP. The motor activity loss and movement disorder that develops in a child with CP increase the functional dependency of the child in his daily life and cause him to need more support. All family members are somehow involved in the health services provided to children with CP. Parents are constantly involved in the life of the child with CP and become aware of their child's abilities and needs. Parents of children with CP participate in treatments, education services and general medical check-ups; They have many responsibilities such as the use of drugs, devices, educational materials. Therefore, involving parents of children with CP in the rehabilitation process provides a stronger rehabilitation service for their children. In the studies, it was stated that the active participation of the parents in the physiotherapy and rehabilitation process increases the success rate of the treatment and the participation of the parents plays a key role for the success of the physiotherapy and rehabilitation. Parental support contributes to health and well-being and influences the success of long-term rehabilitation. With the increasing importance of family-centered practices in recent years, parents have started to take an active part in rehabilitation studies by continuing the practices in the clinic at home and in the community. It is an increasingly important view that parents play an important role in the lives of children with CP. The acceptance of family-oriented care and the emergence of new theories on motor development have affected the treatment approach to children with CP, and the practices have become more family and function-centered rather than child-centered. The aim of this study is to investigate the awareness of parents of children with CP about the disease, physiotherapy and rehabilitation. ;

Related Conditions & MeSH terms

• Awareness
• Cerebral Palsy
• Paralysis
• Parenting
• Parents
• Physical Disability

• NCT number: NCT05213663
• Study type: Observational
• Source: Kahramanmaras Sutcu Imam University
• Status: Completed
• Start date: January 1, 2022
• Completion date: February 28, 2022