Assessment of Safety of Air Travel in Patients With Birt-Hogg-Dube Syndrome

Birt-Hogg-Dube Syndrome Clinical Trial

Official title: Assessment of Safety of Air Travel in Patients With Birt-Hogg-Dube Syndrome

Status Completed

Clinical Trial Summary

The aim of this study is to conduct survey-based assessments for the safety of air travel in patients with Birt-Hogg-Dube syndrome (BHD). The study will enroll patients through the clinic network at Rare Lung Disease Consortium (RLDC) and through the BHD foundation website. Patients will have access to the questionnaire via REDCap (an online data management system) and each patient will be provided with a link to complete the survey. The investigators plan on enrolling approximately 100 patients with BHD for the purpose of this study. Secondary aims of this study include further characterization of the clinical aspects of disease and to establish a contact registry for these patients, in order to facilitate future studies.

Clinical Trial Description

n/a

Related Conditions & MeSH terms

• Birt-Hogg-Dube Syndrome
• Syndrome

• NCT number: NCT03040115
• Study type: Observational [Patient Registry]
• Source: University of Cincinnati
• Status: Completed
• Start date: August 2015
• Completion date: August 2019