Bereavement Clinical Trial
Official title:
Pictures Of Hope: Parents Reflecting On Hope During Hospice Through Photovoice
NCT number | NCT06187636 |
Other study ID # | PHOTOHOPE |
Secondary ID | |
Status | Recruiting |
Phase | |
First received | |
Last updated | |
Start date | January 30, 2024 |
Est. completion date | October 2025 |
In this study, researchers will use Photovoice to learn about how bereaved parents felt and thought about hope when their children were on hospice. 'Photovoice' is a research method that uses participants' photographs as a springboard for discussion. Primary Objective - To explore reflections, emotions, and experiences evoked in bereaved parents when reviewing photographs from their child's time on hospice, with photos selected by parents based on a prompt related to their thoughts about hope during that time.
Status | Recruiting |
Enrollment | 25 |
Est. completion date | October 2025 |
Est. primary completion date | April 2025 |
Accepts healthy volunteers | |
Gender | All |
Age group | 18 Years and older |
Eligibility | Inclusion Criteria: - Participants must be the parent of a child who: - Received any form of care from a clinician at St. Jude, as documented in the electronic medical record, AND - Was enrolled on hospice at the time of death, AND - Died at least 6 months prior to enrollment, but no more than 24 months prior to enrollment. - Participants must also: - Be = 18 years of age or legally emancipated, AND - Be English-speaking or Spanish-speaking. Exclusion Criteria: - Insufficient comfort or fluency with either English or Spanish language. |
Country | Name | City | State |
---|---|---|---|
United States | St. Jude Children's Research Hospital | Memphis | Tennessee |
Lead Sponsor | Collaborator |
---|---|
St. Jude Children's Research Hospital |
United States,
Type | Measure | Description | Time frame | Safety issue |
---|---|---|---|---|
Primary | Qualitative assessment of reflections, emotions, and experiences evoked in bereaved parents when reviewing photographs from their child's time on hospice | The unit of analysis will be the semi-structured interview, including the transcript and any field notes taken by the researcher during or immediately after each interview. Interviews will be recorded, transcribed, de-identified, and analyzed using qualitative inductive content analysis. Content analysis will include memo-writing, codebook development, coding, reconciliation, and synthesis to identify meaningful patterns and themes. MAXQDA, a sophisticated qualitative analysis software system, will be used to conduct and synthesize analysis. | Approximately 1- 3 weeks after enrollment (The time frame will be flexible to allow for maximal convenience to the participant, with participants empowered to select an interview date outside of the timeframe at their discretion.) |
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