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Angelman Syndrome Video Assessment (ASVA) Source Material Study — ASVA SMS  

Angelman Syndrome Clinical Trial

Official title:
Angelman Syndrome Video Assessment (ASVA) Source Material Study

Clinical Trial Summary

This is a longitudinal, observational, nonrandomized, fully remote study enrolling approximately 55 participant-caregiver dyads. The study includes no treatments or interventions, and participants will not be asked to change their current treatments. The objective of this study is to gather sufficient source material videos to develop a scoring system for ASVA and to perform preliminary validation of that scoring system.

Clinical Trial Description

n/a

Study Design

Related Conditions & MeSH terms

Clinical Trial Details
NCT number NCT05637697
Study type Observational
Source The Emmes Company, LLC
Contact
Status Completed
Phase
Start date August 31, 2021
Completion date August 1, 2023
View Details
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