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The Global Angelman Syndrome Registry — GASR  

Angelman Syndrome Clinical Trial

Official title:
The Global Angelman Syndrome Registry

Clinical Trial Summary

The Global Angelman Syndrome Registry is an online patient organisation driven registry to collect information about the natural history of children and adults with Angelman Syndrome. The registry will facilitate 1) recruitment for clinical trials into therapies and interventions to benefit participants with Angelman Syndrome and their families, and 2) advancement of research and best standards of care for Angelman Syndrome. The registry is currently available in English, Spanish, Traditional Chinese, Italian, Polish, Hindi, and Brazilian Portuguese.

Clinical Trial Description

n/a

Study Design

Related Conditions & MeSH terms

Clinical Trial Details
NCT number NCT05293184
Study type Observational [Patient Registry]
Source Foundation for Angelman Syndrome Therapeutics, Australia
Contact Megan Tones, PhD
Email curator@angelmanregistry.info
Status Recruiting
Phase
Start date September 28, 2016
Completion date December 31, 2099
View Details
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