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Qualitative Study in Patients With Genodermatoses and Healthcare Professionals on Reproductive Counselling

Quality of Life Clinical Trial

Official title:
Investigating Perspectives of Patients With Genodermatosis and Healthcare Professionals on Reproductive Counselling

Clinical Trial Summary

The goal of this observational study is to understand the perspectives and needs of patients with genodermatoses and their partners who wish to have children, regarding their decision-making process and their consideration of reproductive options. Additionally, the investigators aim to investigate the level of knowledge and perspectives of healthcare professionals (such as clinical geneticists, dermatologists and other clinicians involved), and want to explore to what extent patients and their partners are well informed about these reproductive options. To achieve this, the investigators will conduct individual semi-structured qualitative interviews with participants affected by genodermatoses (and their partners) and with healthcare professionals.

Clinical Trial Description

n/a

Study Design

Related Conditions & MeSH terms

Clinical Trial Details
NCT number NCT06330350
Study type Observational
Source Maastricht University Medical Center
Contact Fauve C van Veen, MD
Phone +31433877293
Email genodermatose@mumc.nl
Status Recruiting
Phase
Start date January 1, 2024
Completion date December 31, 2025
View Details
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