Quality of Life Clinical Trial
Official title:
Assessment of Dermatologic Family Impact Scale in the Parents of Children With Psoriasis, and Comparison of This Scale With the Children's Dermatology Life Quality Index and Disease Severity
The Dermatological Diseases Family Impact Scale (DeFIS) was developed to assess different
aspects of health-related quality of life in the relatives of the patients with various skin
diseases. The preliminary validation of this instrument was performed for the Turkish
population. In the pilot study, this 15-item-questionnaire was shown to be easy to complete
and score, and reliably help to evaluate the family members' quality of life.
Psoriasis is a chronic disease which can be expected to have a significant impact on the
quality of life of the patients and parents/family members alike. In line with this
assumption, previous studies demonstrated that psoriasis psychosocially affects not only the
patients, but also their close relatives. The psoriasis family index has been developed in an
effort to objectively measure the health-related quality of life of the family members of
patients with psoriasis. Nevertheless, data regarding the health-related quality of life of
the parents of pediatric patients with psoriasis in the Turkish population are relatively
scarce.
In study, the investigators primarily aim to utilize DeFIS to assess the impact of childhood
psoriasis on the quality of life of the patients' parents. Further, the investigators attempt
to investigate the relation between the quality of life of the patients and their parents,
and reveal disease characteristics which might influence the quality of life.
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