Persons With Disabilities Generating Quality Metrics

Status Completed

Clinical Trial Summary

No standard way exists to measure the quality of medical care or independent living long-term services and supports provided to persons with disabilities. This project will: provide a broader picture of how consumers with disabilities define care and care quality; measure the value of using consumers' expertise in developing, collecting, and assessing quality measures; and use this information to assist One Care providers in improving care delivered to their enrollees

Clinical Trial Description

The aims of the project are as follows:

1. To work with persons with significant physical disabilities and serious and persistent mental illness to develop two new approaches to assess quality of care:

Approach #1: We will survey enrollees about their experiences in One Care and their thoughts about the care they receive. This survey will also ask One Care enrollees about how they manage their care and what self-direction means to them. The survey will be called the Persons with Disabilities Quality Survey (PDQ-S), and it will be available in English and Spanish versions.

Approach #2: Enrollees in One Care will provide information about their perceptions of care quality to a trained team of persons with disabilities who will report the information to One Care care teams. The goal of the activity is to support quality improvement in One Care through hearing the consumer's voice. This is called YES Health - Your Experience: Speak up for better health care.

2. We want to test how providing consumer informed and consumer directed quality information to One Care providers affects One Care quality.

3. We want to improve the ability of One Care enrollees to manage their own health care and to recognize and report quality problems ;

Study Design

Related Conditions & MeSH terms

Clinical Trial Details

NCT number	NCT02390557
Study type	Interventional
Source	Massachusetts General Hospital
Contact
Status	Completed
Phase	N/A
Start date	July 1, 2015
Completion date	October 7, 2016

View Details

See also
Status	Clinical Trial	Phase
Completed	`NCT03305731` - Activating Behavior for Lasting Engagement After Stroke	N/A
Not yet recruiting	`NCT05975476` - Comparison of Two Park-Based Activities on Emotional Well-Being in Adults With Mobility Impairments	N/A
Completed	`NCT02604082` - Comparison of Three Technical Airway Clearance in Mechanical Ventilated Patients	N/A
Completed	`NCT01472263` - Use of Pentoxifylline in Human T-lymphotropic Virus Type-1 (HTLV-1) Diseases	Phase 3
Completed	`NCT01417585` - A Trial of a Client-centered Intervention Aiming to Improve Functioning in Daily Life After Stroke	N/A
Recruiting	`NCT06331858` - The Effect of Adding Instrumented Hip Concentric Abductor Strengthening Exercise in Knee Osteoarthritis	N/A
Completed	`NCT04956705` - Vitamin D and Calcium Supplementation at Danish Nursing Homes	N/A
Recruiting	`NCT05516030` - HIFT for People With Mobility-Related Disabilities	N/A
Recruiting	`NCT04591574` - ABC - A Post Intensive Care Anaemia Management Trial	N/A
Completed	`NCT04562662` - Evaluation of mediVR-KAGURA Guided Therapy	N/A
Terminated	`NCT03696082` - A Precision Rehabilitation Approach to Counteract Age-Related Cognitive Declines	N/A
Completed	`NCT03545932` - Self-perception of Health Status and Physical Condition of Elderly People Practitioners of Hydrogymnastics	N/A
Completed	`NCT04433962` - Investigation of the Effects of Balance Training on Balance and Functional Status Patients With Total Hip Arthroplasty	N/A
Not yet recruiting	`NCT06264362` - Developing a Nonpharmacological Pain Intervention for Community-dwelling Older Adults With Dementia	N/A
Completed	`NCT02926313` - The Effectiveness of Specialist Seating Provision for Nursing Home Residents	N/A
Completed	`NCT02592265` - Measuring Consequences of Disability for Patients With Multiple Sclerosis and Caregivers on Economic Burden	N/A
Completed	`NCT02110290` - Effects of an Adapted Ski/Snowboarding Program on Quality of Life in Children With Physical Disabilities
Active, not recruiting	`NCT01646632` - Exercise Intervention in Institutionalized Elderly People	Phase 2
Completed	`NCT00164476` - Promoting Clinical Preventive Services Among Adults With Disabilities	Phase 1
Completed	`NCT02082171` - Multidomain Intervention to Prevent Disability in Elders	N/A